LDN and Appetite

[youssef]

Hi all,

I been on LDN for about 5.5 months now, started with 3mg and now 4.5mg. Been on 4.5mg for the past 2 months.

Honestly have not really noticed anything, I know it takes awhile so I would really like to stick with it. The problem I am having is I noticed my already low appetite has been getting worse. I eat little and get full very fast. I am already way too thin at 125lb 6ft tall!

Is this normal? Will my appetite eventually come back or get better?

 

[Kev]

Mine did. I initially stuck with my IBD diet for years after LDN stopped my disease, as I was terrified that any change might stop it from working. Then I began experimenting a bit (or bite) at a time. Now I eat whatever I feel like. Thing is... hard to digest foods, or gassy foods, do cause me issues with the large amounts of internal scar tissue I have from my disease. LDN will not make scar tissue or damage from the disease go away, OK?

 

[JDTM]

Youssef,

In my experience, my appetite did gradually come back. That said, if you're getting worse and you haven't mentioned it to your doc, you might want to do so. I wouldn't want you to keep losing weight. Your appetite aside, what other symptoms have you been experiencing?

 

[Jmrogers4]

Yossef,
My 13 year old son's appetite seems to be virtually non-existent. He now takes in appetite enhancer and does supplemental nutrition (Peptide drinks). He was symptom free and doing great at 8 months after starting LDN but still had not gained any weight. We added the Peptide drinks and he gained 23 lbs in 8 weeks. We have noticed if we stop the appetite enhancer or the drinks, he doesn't eat and the weight starts to drop.

 

[youssef]

Thanks for all the replies.

I am lucky that my crohns is pretty mild, I rarely have flares (knock on wood) but I know I am having a digestive problem since I can't gain weight.

My bathroom stools are mostly loose, I sometimes have firm stools, but most of the time it's loose.

I don't take any medications, just supplements and limited sugar/wheat intake.

What peptide drink does your son take? Ensure has too much junk in it and I don't want to take that.

 

[JDTM]

I'd suggest Orgain -- same idea as ensure, but it seems like there's much less junk in it, comparatively speaking at least. You can get them at grocery stores or places like Rite Aid -- not sure what you have for chain pharmacies down in Texas, but start there. I definitely drank Orgain when I was losing weight and didn't have much of an appetite -- it was easy on my guts and it definitely boosted my caloric intake on days where I didn't feel much like eating.