Looks like I will be joining the surgery club

[shazz]

Hi all,
I have just had a phonecall from my IBD nurse to see how I was getting on. So I told her I could feel the begining of another flare. Bleeding, pain, more frequent trips to the loo, hips and knees killing me - the usual.
So she said she has just had a conversation with my consultant to discuss my case, again. He has recomended that I have elective surgery within 12 months. Even though my last colonoscopy came back ok he has said when I have another flare there will be nothing they can do. They are thinking along the lines of colon removal and j-pouch, I think.
Am having a meeting with one of the team next Friday and we will discuss where we go from here. I will be ensuing a research foray now to see what information I can gather and to get any questions straight in my head ready for next Friday.
I am, strangely, a little relieved now. I think knowing they are not going to tell me to try this drug or that drug again is making it easier.
I wish you all a very wonderful Christams and a pain free New Year.
Sharon xxxx

 

[Jessi]

Sharon ~ I really am hoping that, with the removal of the colon, you have no more symptoms. Of course, if it is Crohn's rather than UC, I hope that it will lead to a long remission. You'll be in my prayers. Keep us posted. :hug:

 

[shazz]

Thank you Jessi. I am hoping to get my biopsy results next Friday so will let you know as soon as I do.
Hope you are well.
xxxxx

 

[Jessi]

I'm very well, thank you. I was having a bit of a panic attack earlier, but am now calming down thanks to xanax. This was my first time taking it, so I was a little worried that the pill might kill me. Man, how silly I can get sometimes. But I feel great now.

Yes, definitely let us know as soon as you find out the results. I hope you are well too, love. :hug:

 

[shazz]

I am like that when I take new meds as well. So scared I will react to it and end up in hospital.
Glad you are feeling better now though. :hug:

 

[Astra]

Hiya Sharon

Just reading your sig, you've tried everything to no avail, good luck with your decision, a hard one to make, but hopefully for the best!
Take comfort in reading lots of success stories re surgery here on the forum.
Have a wonderful Christmas!
xxx

 

[shazz]

Thanks Astra.
I think the decision had been made for me because I have tried everything. Have started reading up and gathering lots of info.
Hope you have a wonderful Christmas as well.
xxxxxx