Low hemoglobin and iron and sores

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:voodoo: Ugh... still sick, 14 days after being released from the hospital. Blood tests keep coming back abnormal, very low hemoglobin and iron... sores won't go away, I'm thinking drug induced diabetes? and I just started working again.... c'mon remicade. WORK!:ybatty:
 
Has anyone brought up getting injections to raise your hemoglobin? I was getting them once before when 6mp suppressed my bone marrow, and I believe I got them daily and they worked great. You should ask. And what about iron pills? i take iron daily...anyone brought this up to you?
 
Thats too bad to hear :(. Try to ensure you are getting proper nutritional intake to ensure you giving yourself enough iron in addition to everythign else you need. When disease is active you do not absorb nutrients and vitamins as well, so it is even more important to try and give your body all it needs.

Just be patient. It may take a bit of time, but the remicade works for a lot of people. Be sure to remember (or write down) all of your symptoms though to ensure your doctor(s) know what is going on.
 
"Has anyone brought up getting injections to raise your hemoglobin? I was getting them once before when 6mp suppressed my bone marrow, and I believe I got them daily and they worked great. You should ask. And what about iron pills? i take iron daily...anyone brought this up to you?"


Taking iron, and getting transfusions... gotten 8 units of B - so far. I will ask my doctor tomorrow if the 6mp has anything to do with the problem... maybe it suppressed my bone marrow too? How did you find out? Did you have a specific test done? I've never heard of that happening before. What dosage were you taking. I take 50mgs and 100mgs M W F . Iron 3 times a day, tapering off the prednisone at 30mgs right now, and my next Remicade is on Nov 14th. Thanks for your help.:)
 
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I believe it waas just a sort of blood test. I know I was flaring really bad and was admitted to the hospital ONCE AGAIN. Surgeon came by to see me and was making the decision to isolate me, he was wearing a mask already. I was immune compromised I think they call it. I'm pretty sure it was a simple test. They just gave me a shot of something daily in my leg, not IM, just like subcutaneous and a shot once a week to raise something else.

I honestly dont remember much about taking 6mp I was actually still on atleast 40 mg of prednisone, maybe even 60 and had only been taking 6mp for about a month so it hadnt even started working.

There is also a test called a genotype they can do that will tell them if you can tolerate 6mp in lower dosage, which I cant do that either. And most people that are "allergic" or react to 6mp can not use Imuran either, their pretty close to each other.
 
Thanks for the help. Well, I did end up having to go to the ER. And I was just released. We are going to wait a couple more weeks for another Remicade transfusion. If it doesn't work, then J-Pouch time. If anyone has had this surgery, please let me know how it turned out. Thanks.
 
I have an illiostomy, a j-pouch is a type of illiostomy.

My surgeon opted for the external though because there are complications sometimes with the j-pouch, especially with re-occurance rates.

Dont worry about many trips to the ER, I've been 3 or 4 times in a week before.
 
Thanks for the info. I'm not worried about the ER, it's how frightening my situation is that forces me to go. If it was just pain, that would be one thing, but it is the amount of blood I lose. I was fine, or let's say no bleeding for a week, and then at 10PM wed night I started losing a pint per hour. By the time I got checked in, typed and crossed, I needed 4 units... that was at 2AM and that's with noone in the ER... it's almost like if it were busy, or I had waited longer, I would bleed out. And less life threatening, but equally as scary is how utterly incompetent the hospital staff is some nights (sometimes they are really good) I ended up being in the Hospital 40 hrs, before my GI doc even knew I was there:ymad: The ER staff miscommunicated with the on-call staff for my GI, and then I called his secretary/nurse from my room in the morning, and she didn't get the message to him either. He was very upset and promised that If I was ever admitted again, that they would get him to the hospital immediately regardless of day or hour... plus it's amazing how I just got out of the same hospital, a fairly high tech facility, and they have problems finding my charts and records, I'm bleeding profusely, and no one knows what to do:ybatty: And to top it all off, when I was finally allowed to eat this morning, they gave me pancakes, but forgot the syrup!!!:ylol2:
 
Thats awesome how much your GI actually wants to help. Some GI's do not do anything and seem to not want to know about ER visits until you get back to them and they yell at you for not telling them...Thats another story sorry for that.

I am glad though you are doing a little better now
 
Oh its great having a GI that will always be on call for you. My GI has a POSTED after hours number actually.

I never lost large amounts of blood, I did however have blood in my stool when first diagnosed, because I had colitis, Crohns Colitis, verey horrible. It was actually a lot worse then having it in your small bowel, but maybe thats just MY disease.
 
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