Hello all.
After a few days of lurking around here I decided to join this afternoon. I had no idea that such an internet community existed until I met a lovely young lady at our local hospital that mentioned this place to me, and the parents support network here. I was sat crying in the garden of our hospital last week when she came to check if I was ok- and she was an inpatient, but took the time out to talk and comfort me!. (If you're reading this- thank you so much ).
I am ok, but my son Matt is very poorly with Crohns and has been in hospital now for almost 2 weeks.
Matt's almost 3 years old. He has Crohns in his colon and mouth. We are hoping it remains confined to both areas but know that the nature of this disease means that it can just pop up anywhere at anytime. Right now, Matts taking 6mp, Asacol, various vitamin sups, but we are soon hoping that he will begin Infliximab. There is talk of removing his colon and leaving him with an Ileostomy. This is my big fear. We have a darling of a son, who rarely complains or cries. We were/are hoping to get him to nursery in September. He needs to be toilet trained by then, and we are so far away from being there, let alone throwing an Ileostomy into the mix.
I'm hoping to meet other parents who have children going through this. Does anyone here have a toddler with an Ileostomy? How do you cope, and more so, how do they cope? I know we have to, and we will do all it takes to get Matt back to good health, but its hard watching a little one go through so much more than I have ever been through in my life. He is mine and hubbys world. I just want Matt well.
Looking forward to meeting you around.
Nicola x
After a few days of lurking around here I decided to join this afternoon. I had no idea that such an internet community existed until I met a lovely young lady at our local hospital that mentioned this place to me, and the parents support network here. I was sat crying in the garden of our hospital last week when she came to check if I was ok- and she was an inpatient, but took the time out to talk and comfort me!. (If you're reading this- thank you so much ).
I am ok, but my son Matt is very poorly with Crohns and has been in hospital now for almost 2 weeks.
Matt's almost 3 years old. He has Crohns in his colon and mouth. We are hoping it remains confined to both areas but know that the nature of this disease means that it can just pop up anywhere at anytime. Right now, Matts taking 6mp, Asacol, various vitamin sups, but we are soon hoping that he will begin Infliximab. There is talk of removing his colon and leaving him with an Ileostomy. This is my big fear. We have a darling of a son, who rarely complains or cries. We were/are hoping to get him to nursery in September. He needs to be toilet trained by then, and we are so far away from being there, let alone throwing an Ileostomy into the mix.
I'm hoping to meet other parents who have children going through this. Does anyone here have a toddler with an Ileostomy? How do you cope, and more so, how do they cope? I know we have to, and we will do all it takes to get Matt back to good health, but its hard watching a little one go through so much more than I have ever been through in my life. He is mine and hubbys world. I just want Matt well.
Looking forward to meeting you around.
Nicola x
