Mayo Clinic

[new2crohnsMH]

Hi, just wondering if anyone has any experience with going to the Mayo Clinic for Crohn's treatment? I'm beginning the process of getting an appointment and am wondering if anyone can give any info on positive or negative experiences, and maybe an idea of what to expect.

Thank you in advance.

 

[AshleyElaine87]

Hey! I went to the Mayo Clinic when I was newly dx. I was transported hospital to hospital and stayed at the St. Mary's Hospital for three days. I didn't have a good or bad experience there. I was also out of network with my insurance, which I do NOT advice for going to Mayo. We're still paying it off and that was a year ago!

Anyways, all they told me was that I indeed had Crohn's. Which I already knew, but hearing it from the "Mayo doctors" made me feel a bit better, lol. They also were able to stream line my medications a bit and told me that everything my doctors were doing back home weren't too far off the mark, and just to watch how the flare went.

I also have the constipation Crohn's, and I was getting a lot of obstructions. I finally had surgery and I think I have been in remission since, but I didn't have surgery through Mayo, and they didn't seem to help much in any other area; ie nutrition.

I hope this helps! Oh; and I had Dr. Pardi, he was nice and made sure I got to the right doctors in my home state.

 

[Cornfieldgal]

Mayo diagnosed my Crohn's many moons ago. If our family has a weird medical problem that no one else can figure out we usually make the two hour trip to Mayo. Pros; they are superb at diagnosis and surgical methods. Cons; since they don't usually treat patients over the long term I have found their treatment plans to be outdated relying heavily on generics. My local GI tends to have a better grasp on the new treatments and what combinations work best. Best of luck!

 

[new2crohnsMH]

Thank you both for your replies. I think I am going to kind of feel it out a little bit with them and then go from there after I get a chance to discuss a bit more with them over the phone.

 

[AshleyElaine87]

Good luck! I hope everything works out and you find some answers! I know my mom went to Mayo for something other than GI and she had a wonderful experience, but she was also not in the hospital and had the correct insurance, lol.

 

[LindaS]

My GI wants me to go to the Mayo for a consult if the methotrexate doesn't work. It is in network for me, but I am still apprehensive about it. My sister's sister in law is a diagnostic physician there, and she has assured me that it isn't as bad as I think it is, I'm just not looking forward to explaining my history to a whole new set of doctors. One of our neighbors goes there for his UC, and he likes it.