Medication, what now

[Cosmojo]

Hey,
Out of curiosity anyone else ever been in my situation.
Allergic to steroids, no lie
Humira and Remicade, been there done that, currently off both
6MP-on them awhile ago but not now
Methotrexate-currently on it, inject 15 mg each week, was doing 25mg each week but it would make me barf for almost a day straight once a week so we toned it down.
Surgery- almost had a resection once, surgeon decided not to mid-surgery against my past GI's advice.

Had a remission till I had to come off Remicade and now I'm flairing- going to see my doc in 2 days. I just don't know what is left, or if anyone has had this strange combo

Thoughts?

 

[Novice]

Hi
im not allergic to steroids but theyre never the answer long term for anyone.
I am on azathioprine but my crohns is still flaring doesnt seem to have controlled it at all :/
Been on remicade and tried humira, my doc wont prescribe Methotrexate nor is he encouraging surgery anytime soon.

I think we are looking into cimzia next.

will be interesting to see what other replies you get being in a similar situation

 

[ozzyahmed]

I'm in a similar situation. But I seem to almost always respond to steroids but when they taper down I start to get symptoms again.

Been taking asacol and azathioprine at high doses and they seem to have done nothing. Tried humira also and that didn't work. I have infliximab left to try but if humira didn't work what are the chances of infliximab doing the job?

My doc keeps suggesting surgery but I don't see how this will get rid of my problems long term.

 

[Jennifer]

Hi Cosmojo, did the 6MP work for you? Has your GI talked about adding it to the Methotrexate? Often times its the combination of medications that helps get people and keep them in remission. There's also Cimzia, Low Dose Naltrexone (LDN) and Enteral Nutrition (this might be the closest you can get to the effects that steroids can give) to try.

I'm curious as to why the surgeon aborted surgery? Resections may not seem like a good idea long term but they can provide relief right now and can even kick start remission which can give medications a better chance at keeping you in remission because they aren't having to try and get the condition under control which is likely too severe at that point. Also resections are often done when there's a lot of scar tissue built up (which can cause a lot of unwanted symptoms) and no medication can treat scar tissue so its best to have it taken care of surgically. My resection put me into remission for 14 years (I continued with medication after surgery as maintenance.