Hi all, I have been taking 6MP for some time now, starting on a very low dose which had little effect. I am now on 75mg and seem to feel worse with each increase. I feel very dizzy, sick and frequent headaches, wondered if anyone else has had side effects from this drug? I am seeing my GP again later this week but worry as to where we go next.
Mercaptopurine
- Thread starter Shirleyb
- Start date
Help Support Crohn's Disease Forum:
- Joined
- Sep 30, 2009
- Messages
- 32
i was on it on 75mg for two weeks and had to stop my white bloodcells plumited and my liver was not happy at all.
i had a lot of headaces and was put on mediation for them but like i say i was only on it two weeks. if you arent happy tell your dr. but they should be doing bloods for you every week to check wc and liver function.
i had a lot of headaces and was put on mediation for them but like i say i was only on it two weeks. if you arent happy tell your dr. but they should be doing bloods for you every week to check wc and liver function.
- Joined
- Jan 22, 2011
- Messages
- 252
hi im on it now, im at 75 mg right now and watching whats going on with me also.. im scared of the side effects so im keeping a close eye on it to makes sure soon as i see one thing im jumping off it.. for the month now i been on it i made the doctor take 2 blood test last month and a blood test last week.. and im still going to take a blood test the friday before i have to go see him on the 17th of this month.. i dont care what he says or what the insaurance say, my health is in the middle of this and im making sure they take the blood test to make sure nothings going wrong with me...
i didnt have headaches but i did have side pains that went to my back and thats what made me talk to him.. also i swear my eyes were turning yellow lol but i found out it was in my head.. i still look in the mirror everyday to see if its turning yellow.. i have my doctor on his toes since putting me on this meds..
i didnt have headaches but i did have side pains that went to my back and thats what made me talk to him.. also i swear my eyes were turning yellow lol but i found out it was in my head.. i still look in the mirror everyday to see if its turning yellow.. i have my doctor on his toes since putting me on this meds..
I'm on 100 mg but was up to 150 at one point. When I first started it, almost 3 months ago, I had a lot of side effects. My doc told me to try to stick it out because the side effects would go away as my body adjusted to it. I had headaches, nausea, pain in my legs, and was extremely tired. Well, my doc was right. The side effects went away and now I feel pretty darn good. Hope that's all it takes for you as well. Best of luck, hope you feel better soon
Hi all, I've been on it for over a year. I take 1/4 of a 50 mg pill with 100mg of allopurinol, something about my metabolism. I do tire easy. But, I am not pooping my brains out. Sorry to be gross. But I will take the trade off. I think its all what we can tolerate. My hair did thin that has stopped. I just had my hair stylist give me a short bob. Lemonade. Thats all I can say. I pray thanks to god every day I am not sick...Stay positive. I KNOW its hard. But, keep coming here and whine all you want to us. We are happy to listen and understand. Stay strong. Peace--Sue
- Joined
- Mar 22, 2009
- Messages
- 958
How long have you been on it, ShirleyB?
I was on 6MP for a few weeks, the side effects were too bothersome so I had to discontinue it.
I was on 6MP for a few weeks, the side effects were too bothersome so I had to discontinue it.
Hi Shirley! 6-MP is what brought me to this forum!!! I was on 75 mg (gradually had been increased) and I always felt nauseous, tired, had headaches, some hair loss... each time I told my doc, he'd say it would take time for me to get used to this drug. Well, after 7 months, 2 bouts of bronchial pneumonia, blood counts dropping and my liver out of wack, the doc agreed that this wasn't the drug for me. It is frustrating, but you know your body. I didn't feel any better on the 6-MP (which I took w/8/500mg Pentasa/day.) Now, I'm off it, am still hitting the john as many times as before but at least the headaches and nauseau have gone away.
It's great for some people (and they will tell you this b/c some people are lucky enough to be able to tolerate it.) It wasn't for me.
Good luck!
Jan
It's great for some people (and they will tell you this b/c some people are lucky enough to be able to tolerate it.) It wasn't for me.
Good luck!
JanThanks from Shirleyb
Hi all, thanks again for all your replies. Once again it really does help to know other people have the same experiences. I have been on the 6MP for about 6 months starting on 25mg. It was only as the dose was increased (now on 75) that I started to get the side affects but my blood tests so far have not been too bad.
Hi all, thanks again for all your replies. Once again it really does help to know other people have the same experiences. I have been on the 6MP for about 6 months starting on 25mg. It was only as the dose was increased (now on 75) that I started to get the side affects but my blood tests so far have not been too bad.
- Joined
- Jan 22, 2011
- Messages
- 252
yeah i at 75 mg now im starting to get tired.. its hard to get energy to do anything right now.. my doctor wants me up at 100 mg but i m gonna seriously talk to him about that amount.. if 75 mg is making me this exhausted i dont want to chance it with 100 mg.. thank god ill be seeing him on the 17th of this month that way ill try and see if i can stall on taking the amount and stay on the 75 till i can see him
