Missing school with IBD

[ryanroks1]

Hi everyone!

I'm currently awaiting diagnosis and I'm managing my symptoms with Pentasa. Although I had to miss a few weeks when initially experiencing symptoms, I'm now back at school for the majority of the time. However, sometimes I stay off simply out of fear. An example would be if I hadn't needed the toilet the day before, and I'd stay off the next day just in case I'd get an urge and not make it while in school. On most of these days, I'm fine and could've went in, so I feel incredibly guilty and feel as if I'm effectively skiving. My school has told me I can leave the classroom whenever I feel like it, but I find it so awkward just walking out in front of all my friends, and currently, if I go to the toilet the night before I don't need to go during school hours. Has anyone had any similar experiences, or any tips on how to overcome this fear?

 

[my little penguin]

My kiddo was dx in second grade so bathroom issues were huge
A few things that helped
Seat by the door so everyone doesn't see you leave
No need to ask for permission- he has a card he places on his desk with just his name but older kids just leave
A special restroom ( nurse restroom or staff restroom with keys ) so you don't worry about others seeing or hearing you.
A care package in the nurse office ( fresh clothes , wet wipes etc) so no worries about an issues
Ccfa has a good list of school accomindations

http://www.ccfa.org/resources/template-section-504-plan.html

And

http://www.ccfa.org/resources/guide-for-teachers.html

 

[SupportiveMom]

my teen has faced this issue. MLP brings up good suggestions. By your user name I will guess you are a guy so this may not be ideal, but a suggestion. my Daughter wore a bladder pad or depends in certain situation. She takes public transit and sometimes can't get to a bathroom fast enough and this helps just in case. Most times she doesn't soil them but it definitely gives her peace of mind.

 

[ryanroks1]

Thanks for your replies. Finally had my consultation with the gastroenterologist, and I'm booked in for a sigmoidoscopy and then they'll work with me on increasing medication doses. I've been given iron and I'm feeling a lot less tired, also helping me get into school. Things have improved and I can hold it for at least 5 minutes most of the time now, so I'm managing at the moment. I've also asked for a key to the disabled toilet and this is getting arranged for extra peace of mind.

 

[SupportiveMom]

Glad you are getting some energy & school support! Let us know how the colonoscopy goes!

 

[shamrock15]

It's a tough thing to do when you are younger - image seems so important. Most of the tips that I have are more mental in nature. Firstly, your friends will support you. Those who aren't friends don't matter. Simple lesson to learn, but difficult to practice and it applies to pretty much everyone, not just crohnies.
Secondly, while pads are not as feasible for males, a little toilet paper put against the bum can buy you a couple extra moments when rushing for the washroom. It has helped me out considerably, and doesn't have the visible issues that pads do at your age.
I like the idea of the emergency kit at school for you though. It's a good idea to carry with you when you are done school as well.