MRI shows nothing but have severe symptoms?!

[twiggy6]

Hi guys.

In April of this year I started having symptoms again and was tested (via stool test) for inflammation, this came back with inflammatory markers. My doctor put me on infliximab which has not worked. Over the last three months my symptoms have gotten steadily worse, until I eventually couldn't eat and have been hospitalised. However I had an MRI and it shows no inflammation or stricture! Has anyone had inflammatory markers and severe symptoms and nothing showing on the MRI?

Another doctor thinks that my bowel isn't functioning properly (due to trauma from the surgery I had a year ago possibly) and that's what's causing my symptoms. But that doesn't explain the inflammatory markers I had back in April. My doctor is being horribly vague about this, has anyone had there bowel not work properly (not due to inflammation) and it cause extreme pain and nausea to the point of not being able to eat?

Would love to know if anyone has been in any sort of similar situation!

:sign0085::sign0085:

 

[Ian_H]

I have in the past had severe pain and diarrhea with high inflammation markers but nothing on a ct scan. Other times the ct scans showed wall thickening etc.... I hope you start to feel better! Have you thought about a 2nd opinion?

 

[AnnieYa]

I had an MRI about a month ago which came back fine. I am not fine. Whilst the pain is milder than my first flare the nausea is extreme.

When was your last colonoscopy? Cameras are the way to go.

 

[twiggy6]

My pain is milder whilst the nausea is awful as well! I think colonoscopy is definitely the next step. Thinking the inflammation might be in a different place due to the change in my symptoms, maybe somewhere that doesn't show on the MRI? But it feels like it's in my small intestine again from the pain.

my sister thinks I should try and get another opinion possibly, I feel like they're misjudging my symptoms, and doctors are using evidence (like the fact that my bloods don't show inflammation although stools tests do) to support what they think is wrong. but they have said about doing a colonoscopy so think I'm just going to be pretty demanding of getting that.

thanks for your replies!

:hug:

 

[teeny5]

I agree, push for a colonoscopy.

 

[AnnieYa]

My pain is milder whilst the nausea is awful as well! I think colonoscopy is definitely the next step. Thinking the inflammation might be in a different place due to the change in my symptoms, maybe somewhere that doesn't show on the MRI? But it feels like it's in my small intestine again from the pain.

my sister thinks I should try and get another opinion possibly, I feel like they're misjudging my symptoms, and doctors are using evidence (like the fact that my bloods don't show inflammation although stools tests do) to support what they think is wrong. but they have said about doing a colonoscopy so think I'm just going to be pretty demanding of getting that.

thanks for your replies!

:hug:

Where did they say it was the first time? I've only had a sigmoidoscopy so it was only proven to be in the colon, but all my pain tends to be on the right-hand side. MRI obviously indicated no small bowel involvement, but I saw my consultant the other day and he suggested that my symptoms contradict that and don't make sense with what they'd previously believed. I'm scheduled to have a colonoscopy (and a gastroscopy, which was traumatic enough the first time round) in the next few weeks.

Don't suffer in silence. If you're ill then it needs to be sorted. Good luck, and keep us posted with what happens. :smile:

 

[buttER]

HI twiggy 6
You have my sympathy. Have you got any medicine for the nausea? Without mine I would have faded to nothing.
I hope you get the help you need.