Just wondering if any of you Crohnies have also been diagnosed with something along the lines of MS, ME or chronic fatigue? And if you have, what symptoms or tests did you have that made your doctor think it wasn't 'just' side effects from Crohn's or meds?
I am pretty much convinced that I have something else going off apart from Crohn's. But my doctors are just trying to put everything as Crohn's or depression. I managed to get some tests done for peripheral neuropathy, to find that my nerves are fine but I have 'white spots' showing up on an MRI of my brain. The neurologist says it is probably left over from a virus I had (the one that triggered the Crohn's), and if it was anything serious I would have deteriorated, but I'm not convinced. I figure that if the virus could trigger Crohn's it could trigger something else autoimmune. And my Crohn's treatment could be treating that too (preventing me from deteriorating).
So if anyone has any experience with other autoimmune disorders alongside Crohn's, I'd be grateful to hear your experiences!
For the record, the main symptoms I have been having are:
Pins and needles in my hands and feet
Muscle fatigue and taking a long time to recover from exertion
Tired all the time- including after just waking up
Brain fog- things like forgetting to do things, making errors in simple tasks like making a drink, difficulty organising my speech, making spelling or grammatical errors in writing
These have been going on for 18-24 months now. And while I *thought* I wasn't getting worse, looking back on some of my previous posts on here, I have got very gradually worse. Except the tiredness which sometimes seems to get better, but then hits full force again.
Diabetes, vit deficiencies, thyroid have all been ruled out!
I am pretty much convinced that I have something else going off apart from Crohn's. But my doctors are just trying to put everything as Crohn's or depression. I managed to get some tests done for peripheral neuropathy, to find that my nerves are fine but I have 'white spots' showing up on an MRI of my brain. The neurologist says it is probably left over from a virus I had (the one that triggered the Crohn's), and if it was anything serious I would have deteriorated, but I'm not convinced. I figure that if the virus could trigger Crohn's it could trigger something else autoimmune. And my Crohn's treatment could be treating that too (preventing me from deteriorating).
So if anyone has any experience with other autoimmune disorders alongside Crohn's, I'd be grateful to hear your experiences!
For the record, the main symptoms I have been having are:
Pins and needles in my hands and feet
Muscle fatigue and taking a long time to recover from exertion
Tired all the time- including after just waking up
Brain fog- things like forgetting to do things, making errors in simple tasks like making a drink, difficulty organising my speech, making spelling or grammatical errors in writing
These have been going on for 18-24 months now. And while I *thought* I wasn't getting worse, looking back on some of my previous posts on here, I have got very gradually worse. Except the tiredness which sometimes seems to get better, but then hits full force again.
Diabetes, vit deficiencies, thyroid have all been ruled out!
