Ms related to infliximab and crohns in the throat?

[KayleighK]

Hello everyone, I've recently been having very weird sensations which lead me to seeing a neurologist. I'm numb from my ribs down along with pins and needles and burning. My father has Ms and he told me to get to the docs as that's how his symptoms started. I'm currently awaiting an MIR scan. It could just be a virus but I've recently came down with the mother of all sore throats. It started with ulcers and now it's full blown puss spots and so difficult to swallow. The doctor said it was tonsillitis, but I don't think it is. How do you know if you have crohns in your throat. My crohns in my Ti has been in remmision since infliximab and tonight I've thrown up blood twice, quite a considerable amount. I'm a little in freak out mode what I'm trying ask is has anyone had a similar experience? Many thanks

 

[DEmberton]

Have they been checking your B12 levels as that can produce pretty much the same symptoms as MS?

 

[my little penguin]

Ds had prolonged tingling in his tongue (days) which started after a remicade infusion.
His was an allergic reaction ( breathing issues a well ).
They also ordered an mri of the brain to make sure there were not any issues similar to ms or demyelination from the remicade .
AZMom had issues for her Dd on another tnf

The mri for Ds was clear so he was permitted to start Humira .

As far as the throat an oral surgeon /dentist would need to biopsy the lesions.
Have you seen a dentist ?

Ds has horrible mouth ulcers most of the time which are related to his crohns/arthritis

Treatment is the same take crohns meds and use a mouth wash to reduce the pain/infection risk

 

[KayleighK]

Have they been checking your B12 levels as that can produce pretty much the same symptoms as MS?

Yes my B12 level have been checked and I get 3 monthly infusions. I initially wasn't worried at all as I thought It must be my b12 levels but the neurologist took bloods one of which was to check my b12 levels and she said if she didn't get back to me within one week I was to assume my bloods were ok. She hasn't got back and she also said she'd be very surprised if it was related to my b12

 

[KayleighK]

Ds had prolonged tingling in his tongue (days) which started after a remicade infusion.
His was an allergic reaction ( breathing issues a well ).
They also ordered an mri of the brain to make sure there were not any issues similar to ms or demyelination from the remicade .
AZMom had issues for her Dd on another tnf

The mri for Ds was clear so he was permitted to start Humira .

As far as the throat an oral surgeon /dentist would need to biopsy the lesions.
Have you seen a dentist ?

Ds has horrible mouth ulcers most of the time which are related to his crohns/arthritis

Treatment is the same take crohns meds and use a mouth wash to reduce the pain/infection risk

I've been off remicade for about 2 years now and the only reaction I has was when they tried to speed up the infusion time. I couldn't breathe and blood pressure shot through the roof.

That's reasuring that the MIR results were positive. I got my appointment through the door today. The 15th of this month so that's good. And as for my mouth I see the dentist next week. I'll see what she thinks. The skin in my mouth is all peeling.

Thanks very much

 

[my little penguin]

He was on remicade for 8 months
He mostly had skin stuff ( blisters , rashes , skin peeling ) but other wise ok until the 8 month mark and no antibodies
Good luck on the mri and dentist -appt

 

[KayleighK]

Just let everyone who kindly responded I have been told that I more than likely have Ms. Just got to get a lumbar puncture so he can give me a definitive diagnosis. I asked about infliximab and was told that infliximab was not the cause of my Ms symptoms but that infliximab could reveal underlying issues. So good advice for anyone thinking about infliximab if any close blood line relative already has Ms

Good health to you all
X

 

[Catherine]

KayleighK

Sorry to hear. Wishing you all the best.

Have a look at getting vitamin D levels up, there is a big study going on now in Australia on the association between low vitamin D and MS.

The rates of MS in our warm states is much lower than Tasmania our coldest state.

 

[DougUte]

MS has an interesting distribution of incidence. The further away you get from the equator, the more prevalent it is. My wife was once diagnosed with it, but they were mistaken. Sorry to hear about your news.

 

[KayleighK]

KayleighK

Sorry to hear. Wishing you all the best.

Have a look at getting vitamin D levels up, there is a big study going on now in Australia on the association between low vitamin D and MS.

The rates of MS in our warm states is much lower than Tasmania our coldest state.

The neurologist I saw advised me to take some vitamin D supplements. So I've started on that. I think as I live in cold, rainy Scotland a holiday to a much warmer place is long overdue!!

 

[Catherine]

This is the study.

http://www.mstrials.org.au/PrevANZ-Trial