Mum with a newly diagnosed 17 year old girl with crohns

Crohn's Disease Forum

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Oct 23, 2011
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Somebody redirected me to this site after reading a post i put on a fb forum asking if there was anywhere a parent could go for advice when their heads are still reeling from watchng their child suffer so much. My daughter was diagnosed after years of stomach problems even though there is crohns in the family she was told because she was well built she couldnt possibly have it, she is now in the 5th month of steroids and just started humira because she has been so ill and as you can imagine at 17 having steroids for 5 months has not gone down very well with their effedts and feeling so ill and being in and out of hospital in the last few months . Hopefully things will pick up soon and she will start to feel like her normal self and thankyou to all the people who post on these forums even when they are so ill themselves that give people like me help and support and the kick up the arse they need when they are feeling sorry for themselves when we are just doing the easy bit by supporting our child when they are going through hell lol but also the : information we need
And may I just say how proud I am of my daughter on how she has coped and been as strong as she has in these last few months :):uk_flag:
 
Hi Tan and welcome! I am sorry about your daughter's diagnosis. It must be so difficult to see your child in pain. Hopefully, Humira will get her feeling well and she can step down off the steroids.

You may want to check out the Parents and Humira forum. I bet you'll find both very helpful.

Crossing my fingers for your daugther!
 
Hello Tan and welcome here also..:)
Real sorry also to hear about your daughter. It must be so tough at such a young age to cope with this disease. This forum is fantastic. I have only recently been diagnosed myself but at 47. At least I have had a good run in life before this hit..
Please send her our support and best wishes..:hug:
Take care..
 
Hi Tan and :welcome:

I'm so sorry to hear about your daughter...:hug:. It's awful that your daughter went undiagnosed for so long because she didn't fit the stereotype that many doctors think of when considering CD.

Five months is quiet a while to be on Prednisone, has she started tapering yet? Is she taking calcium supplements?
I hope the Humira can offer her relief and put her into remission so she can get her life back on track.

Where is her Crohn's located?

Good luck and welcome aboard!

Dusty. xxx
 
The way she was built!!!??? That's the first time I've seen that excuse for delaying a dx! At least now you guys know the devil's name. Good luck and welcome Tan:)
 

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