- Joined
- Sep 3, 2013
- Messages
- 4
I was perfectly healthy basically my whole life, with the occasional stomach cramp, but nothing major at all. I could eat whatever i wanted and was a cross country and track runner all of high school. Then April 20, 2013 i started having random serious stomach pains. It ended up being my colon contracting and spasming but it was the worst pain i ever felt in my life. I ran a fever and was extremely nauseas. After the worst night of my life i was rushed to the hospital in serious pain. I was almost passing out from the pain. I never thought this would happen to me. I didnt sleep at all and was put on heavy pain meds, dilaudid and morphine and was still in serious pain. 5 days later the pain began to subside but i was still experiencing terrible spasms. I had CTs done and xrays but nothing showed up. I was released from the hospital and went to school, im 17 and took a test and came home and collapsed. The next day i was at the hospital again, in even worse pain, for those who have felt spasm they no what it feels like and i had one lasting for 8 hours, agonizing!!!! I was in the hospial for 21 days and crohns experts and many doctors were brought in. They said they had never seen someone on so much pain medicine. I was now having mostly 9 bms a day and mostly bloody. I was put on 80mg of steroids and it did nothing. I was put on remicade and went through 3 rounds and it did nothing. After many colonoscopies they found my whole colon to be seriously inflamed. I went home and for a month continued to decline. I ate basically nothing and dropped 50 lbs. I was having more frequent bloody bms and contracted cdif infection. I was put on more meds and more everything and after a month at home in hell was on 8 medicines. I then had an allergic reaction one day after visting my gastroentorologist (however you spell that) and my throat closed. I was rushed to the hospital in an ambulance. I was sent home that night and the next day woke up feeling even worse. I went to the hospital again and these were the worst 6 days of my life. I went from bad to critical and was having bloody bms maybe 30 times a day. I couldnt move and needed enemas and more heavy pain meds. I needed blood transfusions and my organs started to shut down from the stress and i was down to 92 lbs. I just wanted the hell to be over so we brought a surgeon in. I had a protocolectomy the next day in emergency surgery to save my life. We opted for the 3 part jpouch surgery. I woke up and even more hell began. I developed severe ileus and severe gas pains. My stoma wasnt working and i wasnt able to eat or drink anything for 7 days so i had a pick line put in to feed me. After 12 days the stoma started to work and i was released on july 4 2013. I went home with the pick line and felt extremely weak, i couldnt eat anything and couldnt move. I went back to the hospital a week later and it was found the pick line gave me a staph infection in my blood stream. I was put on antibiotics for 20 days. I remeained in the hospital for 1 week and was released and had to do my own iv at home and all that good stuff. And FINALLYYYY i started to feel better. I slowly began to eat again and had a few bag accidents but learned to control the bag and deal with it. 3 months after surgery i have my next surgery a week from tomorrow. I have gained weight and am back to basically healthy again. I was a straight A, leadership, AP kid who did varsity sports and im 17. I lost it all but after my last surgery in november i hope to be able to get back to most of my normal life. Ive been feeling great lately though and have gone to parties again and am being homeschooled now. I went through the worst progression my doctors have ever seen, from fine to almost dying in 3 months and lived to tell the tale. If anyone has questions or wants to know more, i hope i can inspire and help others, beleive my i've been through it all.
