My colonoscopy was normal but biopsy showed granulomas

[Uofmiamikf]

I have had bowel issues off and on for the last 5 years. This last flare was the catalyst that finally sent me to the gastroenterologist. I freaked out when I had 20 mouth sores at once, along with debilitating arthritis pain in my knuckles, urgency to go with loose stool sometimes bloody, passing my time released medication without absorption and the stomach pain in the right lower part of my abdomen and a burn. I had a colonoscopy that my Dr. said looked normal only to receive a voicemail a week later saying I had granulomas and a benign polyp. Of course I had no idea what a granulomas was, so I googled it. Basically I have symptoms of IBD, granulomas with normal blood work and normal colonoscopy. My doct says she believes I have IBS and for us to monitor this closely. I'm confused bc I have read many post with people having the opposite issue as mine, upset they aren't being diagnosed without granulomas but they have visual imflamation during the colonoscopy. Any thoughts? I appreciate your feedback.

 

[ronroush7]

I am no expert but with the bloody stools I would wonder if it were more than IBS.

 

[my little penguin]

You could try a second opinion
Ds had a normal looking colonscopy and bloodwork
But had granulomas so was dx with crohns

 

[Pilgrim]

My GI told me recently that research is leaning towards granulomas NOT being used as diagnostic of Crohn's. Figures it will take within ten years to change the guidelines.
Which just confused me. So I can't help.Then what would they mean?

 

[Optimistic]

Second what Pilgrim said. Boston Children's told us same thing about granulomas.