- Joined
- Aug 14, 2015
- Messages
- 13
Hi!! My name is Harshad and just joined this forum. I am diagnosed with Crohn's and would like to share my story with all of you.
I was in US studying my masters when I was diagnosed with Crohn's in Jan 2013. It all started with bloody diarrhea. I underwent colonoscopy and was diagnosed with Crohn's. I had never heard about this disease and doctor said there is a medicine for that so I didn't even do any research on it. I took Lialda (Mesalmine) as well as Corticosteroids. Soon in 5 months I started feeling better and stopped my medicine on my own.
I graduated and started my job in Feb 2014. Everything was going well but then in July 2014 I started having bloody diarrhea again. I thought this was due to my irregular food habits had no idea that Crohn's is back. I took over the counter medication till August but didn't work out for me.
In August 2014 my health started deteriorating faster and I lost a lot of weight and had unbearable rectal pain. Soon I saw blood and yellow liquid coming out of rectum unnoticed. It used to visible from outside with a bloody patch on my pants which was naturally uncomfortable for me at work place. I was dumb I didn't go to doctor even after this.
Then on September 12, 2014 I went to a Gastroenterologist in Huntersville (NC). I was in great pain. He checked me and immediately asked me to undergo colonoscopy and CAT scan. After my colonoscopy he said there is a inflammation in small intestine and rectum but only a CAT scan will clear the findings. I did the scan and results were out in an hour.
I had developed large perirectal abscess. I got a call from doctors office saying I have to get admitted immediately and undergo an incision and drainage surgery the same night. I underwent two incision and drainage surgery with placement of Seton in a matter of 3 days. My gastro doc started Prednisone on me as well as Lialda. But my condition was getting worse day by day. Gastro doc said it looks like Prednisone and Lialda are not working on you, so the only option we have for you is Remicade.
Soon I started feeling better. The surgeon told me that I have to undergo Fistulotomy as I had also developed a Fistula. During my stay at hospital I took a lot of heavy painkillers like Morphine and Oxycodone. I never had such kind of pain before in my life. I have a special ability to stretch my pain.
I am very sensitive person, I used get anxious even when a nurse used to touch me. Doc said I am a 10 year old boy in a 27 year old body and he was really caring about me as I had no one in United States. My parents were back in India and I was all alone and on my own.
My awesome Gastro even helped me getting my parents come to US.
By December 2014 I had started my Indian food which my mom made for me and I was cleared for Remicade after a CAT scan.
In January 2015 I started Remicade. It really worked on me and within 48 hours I was on my feet. I was on bed on my stomach since September 2014. I was very happy.
As I had no one to take care of me in US my Gastro doc suggested me to move back to India as I will have my parents to take care of me if something goes wrong again.
By this time I went into depression as I had lost my job and had to return India leaving my dreams of settling down in US. I had to leave my Mercedes which was everything to me. I was devastated. I moved back to India in Feb 2015.
After reaching India my health started getting better at a faster rate. I believe its bcoz of the food plan I was having. The only pain I had was of rectum coz of the incision. I also gained weight and reached to 155 pounds.
I got in touch with a gastro doc in my home town and he advised me to continue Remicade. Crohn's is rare in India but UC is common. May be due to hot weather and different kind of bacteria in the environment. No one knew about it even some doctors.
In India we have alternative medicine known as Ayurveda. I talked with my doctor about it and he cleared me to go for it. I started Ayurveda medicine and it's been 4 months now. I also underwent a 7 day Naturopathy treatment at an Ayurveda Center at the foothills of Himalayas. It was awesome.
Currently I am still on Remicade and will take my 6th dose on August 19th.
My food plan has helped me immensely to get over this disease. After all its all about your food. Everything starts in stomach.
Food is the key. Remember your brain is connected to your stomach and vice versa. Indian food really helped me.
So this it, After 12 months of pain I am now on normal routine and looking for a job. I am reading a book which tell us about our food and its really helpful as it also has scientific evidences as reference which helps me in cross verifying.
Thank you so much for taking out your time to read my story
Lots of Love and hugs
Harshad
I was in US studying my masters when I was diagnosed with Crohn's in Jan 2013. It all started with bloody diarrhea. I underwent colonoscopy and was diagnosed with Crohn's. I had never heard about this disease and doctor said there is a medicine for that so I didn't even do any research on it. I took Lialda (Mesalmine) as well as Corticosteroids. Soon in 5 months I started feeling better and stopped my medicine on my own.
I graduated and started my job in Feb 2014. Everything was going well but then in July 2014 I started having bloody diarrhea again. I thought this was due to my irregular food habits had no idea that Crohn's is back. I took over the counter medication till August but didn't work out for me.
In August 2014 my health started deteriorating faster and I lost a lot of weight and had unbearable rectal pain. Soon I saw blood and yellow liquid coming out of rectum unnoticed. It used to visible from outside with a bloody patch on my pants which was naturally uncomfortable for me at work place. I was dumb I didn't go to doctor even after this.
Then on September 12, 2014 I went to a Gastroenterologist in Huntersville (NC). I was in great pain. He checked me and immediately asked me to undergo colonoscopy and CAT scan. After my colonoscopy he said there is a inflammation in small intestine and rectum but only a CAT scan will clear the findings. I did the scan and results were out in an hour.
I had developed large perirectal abscess. I got a call from doctors office saying I have to get admitted immediately and undergo an incision and drainage surgery the same night. I underwent two incision and drainage surgery with placement of Seton in a matter of 3 days. My gastro doc started Prednisone on me as well as Lialda. But my condition was getting worse day by day. Gastro doc said it looks like Prednisone and Lialda are not working on you, so the only option we have for you is Remicade.
Soon I started feeling better. The surgeon told me that I have to undergo Fistulotomy as I had also developed a Fistula. During my stay at hospital I took a lot of heavy painkillers like Morphine and Oxycodone. I never had such kind of pain before in my life. I have a special ability to stretch my pain.
I am very sensitive person, I used get anxious even when a nurse used to touch me. Doc said I am a 10 year old boy in a 27 year old body and he was really caring about me as I had no one in United States. My parents were back in India and I was all alone and on my own.
My awesome Gastro even helped me getting my parents come to US.
By December 2014 I had started my Indian food which my mom made for me and I was cleared for Remicade after a CAT scan.
In January 2015 I started Remicade. It really worked on me and within 48 hours I was on my feet. I was on bed on my stomach since September 2014. I was very happy.
As I had no one to take care of me in US my Gastro doc suggested me to move back to India as I will have my parents to take care of me if something goes wrong again.
By this time I went into depression as I had lost my job and had to return India leaving my dreams of settling down in US. I had to leave my Mercedes which was everything to me. I was devastated. I moved back to India in Feb 2015.
After reaching India my health started getting better at a faster rate. I believe its bcoz of the food plan I was having. The only pain I had was of rectum coz of the incision. I also gained weight and reached to 155 pounds.
I got in touch with a gastro doc in my home town and he advised me to continue Remicade. Crohn's is rare in India but UC is common. May be due to hot weather and different kind of bacteria in the environment. No one knew about it even some doctors.
In India we have alternative medicine known as Ayurveda. I talked with my doctor about it and he cleared me to go for it. I started Ayurveda medicine and it's been 4 months now. I also underwent a 7 day Naturopathy treatment at an Ayurveda Center at the foothills of Himalayas. It was awesome.
Currently I am still on Remicade and will take my 6th dose on August 19th.
My food plan has helped me immensely to get over this disease. After all its all about your food. Everything starts in stomach.
Food is the key. Remember your brain is connected to your stomach and vice versa. Indian food really helped me.
So this it, After 12 months of pain I am now on normal routine and looking for a job. I am reading a book which tell us about our food and its really helpful as it also has scientific evidences as reference which helps me in cross verifying.
Thank you so much for taking out your time to read my story
Lots of Love and hugs
Harshad
