My Crohn's Story

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Joined
Nov 9, 2010
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12
Tried to keep it short. Failed dismally!

My onset of Crohn’s was sudden and frightening. At the beginning of June I was happy and healthy, busy training for a 3-week trek in India (part of my job) and looking forward to a summer of attending music festivals with my boyfriend.

3 weeks later I was in constant pain, with no energy, single, and living on my mother’s surprisingly comfortable sofa – I barely left it for 2 months.

My symptoms appeared overnight, beginning with a day of unceasing pain and chronic Diarrhoea (which is strange as since the first week my main symptom is constipation). This started the day after a fabulously drunken dinner party with friends, at first I blamed over indulgence – but the pain just would not go away, I dragged myself to work for the first couple of weeks, trying to convince myself there was nothing wrong, I finally cracked when I had to tell work that I could not go to India – I was out of breath just walking up the stairs.

My 2 year relationship ended at this time, it seems my boyfriend was not ready for an ‘in sickness and in health’ commitment. I was told that I was self-pitying and depressed. I don’t think anyone realised quite how terrible I was feeling, or just how hard it was just to drag myself out of bed in the morning. I’d like to have seen him try!

Not knowing what were physical symptoms and what was heartache, it took me longer to go to the doctors than it should have. When I did I was sent straight to casualty suffering from severe anaemia, by this point I had lost about 2 stone (28lb) in weight.

After weeks of endless blood tests, tears, endoscopies, more blood tests, colonoscopies (they’re a treat aren’t they), hospital visits, more tears, overdraft limits, X-rays, MRI scans and (yes, you guessed it) more blood tests, I finally have a diagnosis. Crohn’s disease.

Having a diagnosis felt like a weight being lifted of my shoulders, I didn’t feel sad about it at all. The change to my life is inexpressible, but at least I know what I am dealing with, and I know who to call when the proverbial hits the fan. I am trying to look on the sunny side!

I am currently taking Prednisolone, along with Mesalazine, Azathioprine, and various supplements and, though I rattle like when I walk, for the first time since June I feel like myself again. Don’t get me wrong, Prednisolone messes with your brain in no small way, and I’ve hardly had a wink of sleep, but I have my energy back for the while, I’m back at work, I have hope again and this weekend I was able to go for a 5 hour hike up and out in the hills where I live. I confess I cried like a baby.

I found this forum looking for others who were going through similar times, It’s already been tremendously helpful to read other people’s stories - so thanks everyone for sharing. XX
 
Hi Caroline, welcome to the forum. Sorry to hear that your boyfriend flaked out on you, but it sounds like you're better off without him! And glad to hear you were able to get a diagnosis relatively quickly - believe me, some of us wait a loooong time for a diagnosis. I've currently been ill for just over a year and I still don't have a diagnosis, so count yourself lucky that you have a name for what you're dealing with! Glad to hear you're on the mend and able to get back to your life again - I love reading this type of story! :)
 
Hi Caroline, I have to say your summer sounds pretty similar to mine, I too was diagnosed in May this year after only having symptoms since easter for the first time. I also had a pretty dramatic introduction to crohn's and ended up in hospital with a perforated bowel. I'm also on pentasa and pred and feel so much better now. I am going in for a small bowel resection week after next though and hopefully fingers crossed get off the steroids. Sorry to hear that your boyfriend left you but your so much better without him. Anyway i've gained great experience from this forum so hope you do to.
 
Hi Caroline. I had a similar sudden onset like you. Terrifying isn't it. After the reams of tests i too was pleased with a diagnosis of Crohns. I also live in the Lakes and was treated at the WCH which often gets bad press but they saved my life so i have nothing but praise!!
Anyway my nightmare started 2 years ago almost to the day. I just wanted you to know that it can be a terrible disease but for some of us it is manageable with medication. What you don't need is your boyfriend's attitude. A solid support system is vital and you will definitely get one here. Good luck and carry on hiking!!
 
Hi Caroline
and welcome fellow Brit

so glad that no mark is out of your life! sorry if that sounds blunt but speaking from personal experience here!
And it's great that you now have a firm diagnosis too!
good luck with the meds, Pred isn't everyone's favourite, but it heals inflammation and it saved my life! I quite liked it actually, felt human again!
glad you found us, lots of friends here for you
lotsa luv
Joan xxx
 
Hi Caroline and :welcome:

I'm glad you found your way here 'cause there's loads of info and support and you will be a most welcome addition! It's good to hear you are getting things under control and I hope the bugger doesn't rear it's ugly head for a very, very long time to come. Oh that's the Crohns I'm talking about, not the ex, but then again maybe him too! ;)

I hope you stick around and please keep us up to date with how you are keeping. Good luck and welcome aboard!

Take care, :)
Dusty
 
Hi Caroline, welcome!! Your sunny side comes through in your post!! I hope you stick around!! Good luck!!
 
Thanks for the welcome everyone, what a great bunch you are! There is so much help and advice on here, just makes me wish I'd found my way here a couple of months ago. x
 
Hi Caroline.

How lucky of you to live in such a lovely part of the country! :)
It certainly is a massive relief to get a diagnosis and although the pred is evil in ways, it does show that it is possible to become well again and do 'normal' things.

I hope things continue to improve for you!
 
Hi welcome to the site, I am new on here to. I am learning so much about the diseases we are faced with on here. I did not even recieve a leaflet about crohns from the hosptital. Your symptoms sound similar to mine in the very early days. Please take pred with caution, I know we need them at some point. I became reliant upon them...taking really high doses. I believe taking pred made my symptoms worse, they could never control it. I now take infliximab via a drip and have never looked back.
 
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