My Crohn's story

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Joined
Jul 29, 2011
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The title said to post like a remission story and currently I am in a flare up so I hope that's ok...
My name is Brittany and I have suffered from Crohn's for 11 years. I am 26, married and the mother to a beautiful little boy. I was 13 when I was diagnosed and from what I understand that's extremely young for a Crohn's diagnosis. I was told by numerous dr's originally that I had an eating disorder after going from 140 lbs to 75. I begged the dr's and my family to listen to my cry that I wanted to eat but it hurt too bad. Finally a eating disorder specialist at Texas Children listened to me and rushed me right over to the GI center. A wonderful, life saving Dr. named Dr. Klish diagnosed me on the spot after only 10 mins with me. It took a hospitalization for a week and Prednisone through the I.V to mend the damage the Crohn's did in 5 months. I would like to blame it on the young issue that I never fully learned a lesson and kept pushing the limits of my disease till at 18 my body finally had a breakdown.

I went through emergency bowel resection and lost several feet of my intestines. I got on my meds. after that and tried my hardest. When I was 19 I got married and pregnant. My Crohn's magically went into remission and I ate everything I could in sight!!! I gained 80 lbs!!! It took a few years after my son was born to really come back but when it did I was miserable. Due to financial struggles I self treated the Crohn's with binge eating and tylenol until my body yet again started dropping the weight. I went from 200 to 150 in 4 months. I finally got insurance and into a dr. For the last few months I have been on Imuran, tapering Prednisone and Asacol. The Imuran would be a blessing except for the liver deficiency problem I was born with. I have to really monitor my meds. I am struggling now and trying to not let the Crohn's control my fear or life. I am in search of friends who understand and know what it is to have this... My family are good at times but really don't put themselves in my shoes. Some compare their problems to mine or act as if its me being dramatic. I have never used my disease to get me into or out of anything and my stubbornness is proving to be a problem in my life.
 
Hi Brittany and welcome! Well, you found the friends you're looking for! :)

Goodness, it sure sounds like you've been through a lot, you poor thing. That's terrible that you were accused of having an eating disorder :( Thank goodness that one doctor finally listened to you.

We're here for you any time. I wish you all the best and hope to see you around!
 
Wow! You do have a heart string pulling story. I'm sorry that you've been through all this. Hopefully with finding this forum, you'll also find more love and support. Everyone here is wonderful, and gives great advice.

Best wishes <3
 
Welcome to the forum Brittany!

13 is actually not too young for a diagnosis. Members have been diagnosed anywhere from shortly after birth to well into their 50s and beyond. Around the time of being a teenager is a fairly common time for the disease to emerge actually.

You will find lots of new friends who know what you are going through here! We all know what it is like having to deal with those who are not fully supportive and even those who are that do not understand what it is actually like to go through what you have.

Hope to see you online soon!
 
Wow, Thank you all for your kind words and welcoming attitude! I really am glad I found a place to read other sufferers story's and questions and have a Crohn's family finally!! Lol
 

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