Hi
My story begins in May 2012 a week before my 16th birthday. I was always a very skinny child and my parents always put it down to being a fish eater which we learned later was the crohns. I woke that morning in may with an awful vomiting episode and as the day went on Abdo pain, diarrhea,everything. It was the worst ever. My parents decided to call an ambulance because I only weighed about 6stone and my body couldn't handle the sickness. The ambulance men saw me and said "omg this child is severely malnourished" they yelled at me for not eating and I was saying I CANT!!. I spent a few nights in hospital being seen by dieticians. During the summer we were due to go for a holiday and my parents separated. I became sick with abdo pain and stuff the day before so went to hospital again. They said nothing was wrong with me so sent me home. An hour later I was back in an ambulance. They couldn't find anything physical wrong so they convinced me that I was creating all the pain in my head fir attention!. I was made see social workers, counsellors all who told me I was a liar and crazy. I had huge streatch marks on my back and they said my parents were hitting and starving me. I was nearly taken away from them. Eventually in November 2012 after a horrible summer and a tonne of tests I got a barium follow through. I was convinced it was gonna be a waste of time. The barium had many complications because the liquid wouldn't move through me. This led to my diagnosis of Crohns. At one way I was terrified of my diagnosis but releived at the same time. I wad put on pentasa which was no help. All through 2013 I was in and out of hospital having flares and tests. I was dependant on Steroids for 9monthds had fluctuating weight and my humira was increased to every week. I got remission in November until June this year and am now in a flare and on pred because i ate popcorn!. No one ever tells you about the mental and emotional aspects of CD, only the physical. THIS IS NOT JUST A PHYSICAL DISEASE!!! It affects everything. Only crohnies will understand
My story begins in May 2012 a week before my 16th birthday. I was always a very skinny child and my parents always put it down to being a fish eater which we learned later was the crohns. I woke that morning in may with an awful vomiting episode and as the day went on Abdo pain, diarrhea,everything. It was the worst ever. My parents decided to call an ambulance because I only weighed about 6stone and my body couldn't handle the sickness. The ambulance men saw me and said "omg this child is severely malnourished" they yelled at me for not eating and I was saying I CANT!!. I spent a few nights in hospital being seen by dieticians. During the summer we were due to go for a holiday and my parents separated. I became sick with abdo pain and stuff the day before so went to hospital again. They said nothing was wrong with me so sent me home. An hour later I was back in an ambulance. They couldn't find anything physical wrong so they convinced me that I was creating all the pain in my head fir attention!. I was made see social workers, counsellors all who told me I was a liar and crazy. I had huge streatch marks on my back and they said my parents were hitting and starving me. I was nearly taken away from them. Eventually in November 2012 after a horrible summer and a tonne of tests I got a barium follow through. I was convinced it was gonna be a waste of time. The barium had many complications because the liquid wouldn't move through me. This led to my diagnosis of Crohns. At one way I was terrified of my diagnosis but releived at the same time. I wad put on pentasa which was no help. All through 2013 I was in and out of hospital having flares and tests. I was dependant on Steroids for 9monthds had fluctuating weight and my humira was increased to every week. I got remission in November until June this year and am now in a flare and on pred because i ate popcorn!. No one ever tells you about the mental and emotional aspects of CD, only the physical. THIS IS NOT JUST A PHYSICAL DISEASE!!! It affects everything. Only crohnies will understand