My Crohn's

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Joined
Oct 19, 2010
Messages
16
Well, I thought my life officially ended when I turned 26 years old.

In November I was having stomach problems and having trouble going to the bathroom regularly. I was under a lot of stress with work and school at the time, and when I went to see my doctor he thought I had IBS, and loaded me up with a bunch of anti-depressants. As time went on, nothing was changing, but my work was getting busy for the holidays and I really did not have time to follow up or pursue any advance treatment or tests.

In January, I had a scheduled weeks vacation for my birthday, and my girlfriend and I were going out of town. The day of my birthday, the day before we were leaving, the stomach aches and back aches were getting pretty bad. We decided to go to the ER for a quick fix so that it would not hinder our vacation.

Turned out, I had Crohn's. It was a pretty bad case. My GI doctor refused to treat me medically, and because of all the fistulas and infection, my surgeon would not operate because I was a risk. After a month in the hospital and being on the usual antibiotics, my GI doctor and surgeon figured everything out and I had the surgery. They removed 6 inches of my large and 6 inches of my small intestine. They said I still had some disease on other parts of my intestines but they were not inflamed enough to be removed.

I was immediately put on Remicade which as worked well.

In July, I started to get some sharp stomach pains. I went to the ER, and I was let so saying it was just fluid collection. A week later, a boil started to surface and my surgeon just lanced it saying it was a Seroma.

Another Seroma surfaced a month later and had the same result.


About a month ago I felt more pain, went to the ER again. What they thought was a seroma turned out to be a huge abscess. They drained the abscess, and hooked me up to antibiotics. However, they were different then the usual flagyl and cipro. Instead, I was getting vencomyacin. I guess when I was in the ER from July, I tested positive for MRSA and was released before the results came back. So, currently I have a Picc line and getting Vencomyacin at home. I have another week.

I have had no problems with my Crohn's since the surgery, so I think the remicade is working.
 
Man, That's some story. Good Luck to you. We all wish you the best possible outcome.
Stay positive

Where are you from?
 
Clearwater is a nice area, I am at college at UF right now in Gainesville, but spent most of my days on the east side or Florida.
 
Hi IcEE
and welcome

Yup, quick diagnosis! Even quicker surgery!
wishing you the best of British luck with the Remicade!
stay well, and let us know how you're getting on!
lotsa luv
Joan xxx
 
Hey icEE
I'm glad you finally are feeling better and the Remi is working. Hope things keep that way. Welcome to the forum. Stick around. This place is great, full of wonderful, informative and compassionate people. Definitely a place that people like us can come and ask questions about things were feeling and not have to feel embarrassed. There's no topic off limits. Browse the threads, and don't hesitate to pipe in with anything you'd like to say.

See ya around.
 
Hi I was on the same thing instead of flagyl and cipro..they had me on clindamycin and vancamycin in the IV and the same when they released me orally for another week at ahome...i hope all turns in good favor for you fast. It sounds like you have been through a bunch...hang in there.
 
Welcome icEE!! Hope the remi keeps working for ya!! Good luck with the staph thing!! Stick around!!
 
Welcome welcome welcome to the forum. Best of luck with the remicade. So much good info here and the best people. Please keep us posted and hope you stick around.
 
Hi icEE and :welcome:

I'm glad you found your way here. Wow everything has hit you hard and fast! Sorry to hear about the MRSA and I hope the Vancomycin is knocking it on the head. Good luck with the Remicade and welcome aboard!

Take care, :)
Dusty
 
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