My daughter has Crohns

[veras mom]

my daughter has Crohns

my daughter was just diagnosed with crohns i am in shock and complete sadness. i cant believe this has happened and really honestly i dont understand how drs could have missed this all these yrs. my vera is 17 and has just had rectal surgery to take biopsies and from those five biopsies has been confirmed with crohns. the pain she is in is unimaginable to me and she cries and screams every time she has to go to the bathroom. i dont know what to do to help and feel at fault for this for not knowing for not seeing i feel guilty. now all we can do is move forward but i am terrified of what is to come and i just have to be strong for her. i have been reading up on things and i see so many similarities in others stories and even the section that breaks down the eyes sinuses ans sores and such im just like omg why has it taken this long to get a diagnosis. how did this happen? will it get better? do meds work? is there remission? costs do insurances cover? im a bit overwhelmed and scared for my baby. i just want her to keep living her life as she always has but she seems to debilitated by her bathroom issues. its breaking my heart.
verasmom

 

[DustyKat]

Hi veras mom and :welcome:

First up...:hug:

I so hear you hun and understand your hurt and heartbreak. My daughter went undiagnosed for 18 months and i question myself to this very day about whether I could have done more but it doesn't consume thoughts now.

Unfortunately your daughter's story is all to common on here, , but you can only do so much Mum and if the doctors can't even get it right how can you possibly know.
The main thing now is she has a diagnosis and she can finally get treatment and relief. Just as the symptoms of Crohn's are many and varied so is the response to treatment but there will be something to suit your daughter and she will get better!

Keep asking questions Mum, of us and the doctors, we will do our utmost to answer and to help you through this. For the record, I have two children with Crohn's and they both had very difficult times pre diagnosis and during the early diagnosis time but they have both responded well to treatment and are in remission and living life to the full.
I know you are in dark days now but there is light at the end of the tunnel and the laughter and good times will return.

Pop by our parent's forum and look around, loads of info and support there!...

http://www.crohnsforum.com/forumdisplay.php?f=49

:hang: Mum, you are doing fab!

Dusty. xxx

 

[veras mom]

thanks so much dustykat your kind words are much appreciated. hugs to you as well