My story!
Hey everyone! This 'story' will be updated every few weeks so that I can keep up to date, and if anyone is interested, they can keep up to date.
Firstly, Crohn’s and UC do run in my family on my Dads side.
I’m Tasha. I’m almost 17 years old, yay I can learn to drive soon! I’m just an ill person in general, although I barely ever vomit. I was born was morning glory and a hemangioma on the side of my head that connected to my eye and went round my head and it was growing and really gross. I was going to have surgery to remove it all, but it went on its own. It’s now a tiny scar on the side of my head which no one can see because of my fringe. Phew!
At around 8 years old I got chicken pox. No that a big of deal? Well I was extremely poorly with that.
Then around 10 years old I got HSP (henoch-scholein purpura – I’ll check the spelling later!) which made me really ill obviously and I don’t remember that much about it, but it caused a lot of pain.
I still get a bad back from the HSP. I miss having a healthy back!
I’ve been having stomach issues for 3 years now, but I can trace back quite far and every memory of me, I seem to be ill at some point!
I get stomach pains; a weird sharp achy feeling on the top left of my stomach near my ribs, I feel sick and get cramps. I can’t be bothered to explain all, we all know what I’m on about, and if you’re reading you’ve been through it or know someone who has.
It began affecting my life two years ago. 2010. I went on holiday to Centre Parcs and had the nicest Indian meal but I barely ate for weeks after that. It made me sooooo ill. It wasn’t food poisoning or anything. It’s the fact that I’m allergic to onions, garlics, chives and the rest of the allium family.
At the end of 2010, beginning of 2011 I went on a coeliac diet because we thought there was a chance of that. I went on a diary free diet too. I was living off of water and coeliac bread. Not the nicest. I was still ill.
I was seeing the hospital at the time in the childrens unit. They were not specialists in gastro. They were specialist in children. I was 15 years old and the oldest child there by 8 years roughly. They didn’t know what was wrong so discharged me when I was feeling okay for a few days and said they didn’t want me to come back and see them again. Lovely!
I went into remission for the summer and had a boyfriend. Awww. We
broke up in September 2011 because I began feeling poorly again and he would twist things and became nasty about it all. I don’t need that stress.
Then in October I went back to the doctors. I’ve seen 10 doctors probably! They’re all rubbish but now we’ve found the one. She’s brilliant and asks me to see her every two weeks to check up on things. She knows my past traumas and horrible things I’ve been through. She’s very caring and understands. I’d also like to point out, she is the ONLY GP that is allowed to look at my bum! You should see my face when other doctors ask.. pfft!
On the 27th of Dec 2011 I got really ill one evening. We almost had to call an ambulance because I couldn't move and my goodness, I was in agony.
My mum was brilliant though. I couldn't ask for a better mum/best friend. She called NHS direct (0845 46 47). [If you don't know what that is, it's where you can't go to the doctors and you don't know what to do.. whether to just drive to hospital, or call an ambulance or if you simply want pain advice] We spoke to a nurse and a doctor and because they don't know what is wrong, they can't suggest much. I passed out eventually and fell asleep.
Went to the doctor the next day, who also said that they can't do anything for me until I am a lot worse than I am - ignore the fact that I was in agony last night then
and she said that I have to wait a few months to see a specialist or wait until I am emitted to hospital when all that will help me is morphine. Silly cover Dr who doesn’t understand and asked me IBS type questions. ARGH IT IS NOT IBS.
My amazing, usual doctor sent me to the hospital which is in March 2012 and I’m typing this in January 2012. Then when I began getting worse and blood tests began to show more and more concern for my health, I was bumped up the list to be seen sooner and because of the 27th Dec thing they don’t want it getting worse than that. Lovely contradicting doctors eh?!
Now, the blood tests are showing that me ESR is 35/11 which is fairly high when the healthy person has 11/11. Big gap!
I’ve been having loads of blood tests and urine tests.
Recently I began urinating blood so went to the doctors but saw another lady because my doctor wasn’t in that day. This Dr was concerned that no one has ever looked in to my kidneys. I’ve never had a blood test on them, no one has even thought about my kidneys. All that I’ve had to do with my kidneys was that in September 2011 I saw a Dr about kidney pains, and she said it was just muscular pain and there was nothing she could do about it. The pains have been getting worse and now the blood? Hmm. Also because if you remember, I had HSP when I was 10 and HSP can affect your kidneys in the long term but usually when you’re an adult – I’m 16 at the moment.
This Dr has sent for an emergency ultrasound scan on my kidneys. I’ve had one before – I didn’t like it! But they didn’t check my kidneys. They checked my bladder – not sure why to be honest. My bladder isn’t the problem with my IBD issues… hmm…
I’ve had several more blood tests this month. On Thursday I had an urgent blood test where they mucked up my vein and now it’s all big and red and bruised and bleurghhh. But it looks awesome and I was brave! Haha!
I’ve got to do more urine tests as they have found blood in my urine even though when I did this particular urine test, I couldn’t see the blood. Oh and it’s not my period!
I’m on colpamine, a stronger pain relief than Paracetamol, a medicine that counteracts the pain relief because the pain relief will make me really sick, so this one stops me being sick and feeling sick, I’m on Paracetamol too, and an antibiotic.
I’ve not taken the pain relief or the nausea stopping one because it says not to take them if you’re on an antibiotic or have kidney problems. I’d rather not take the chance. I don’t trust doctors and it wasn’t my regular doctor who told me to take them either.
To be continued… as does my life continues...
:uk_flag:
Hey everyone! This 'story' will be updated every few weeks so that I can keep up to date, and if anyone is interested, they can keep up to date.
Firstly, Crohn’s and UC do run in my family on my Dads side.
I’m Tasha. I’m almost 17 years old, yay I can learn to drive soon! I’m just an ill person in general, although I barely ever vomit. I was born was morning glory and a hemangioma on the side of my head that connected to my eye and went round my head and it was growing and really gross. I was going to have surgery to remove it all, but it went on its own. It’s now a tiny scar on the side of my head which no one can see because of my fringe. Phew!
At around 8 years old I got chicken pox. No that a big of deal? Well I was extremely poorly with that.
Then around 10 years old I got HSP (henoch-scholein purpura – I’ll check the spelling later!) which made me really ill obviously and I don’t remember that much about it, but it caused a lot of pain.
I still get a bad back from the HSP. I miss having a healthy back!
I’ve been having stomach issues for 3 years now, but I can trace back quite far and every memory of me, I seem to be ill at some point!
I get stomach pains; a weird sharp achy feeling on the top left of my stomach near my ribs, I feel sick and get cramps. I can’t be bothered to explain all, we all know what I’m on about, and if you’re reading you’ve been through it or know someone who has.
It began affecting my life two years ago. 2010. I went on holiday to Centre Parcs and had the nicest Indian meal but I barely ate for weeks after that. It made me sooooo ill. It wasn’t food poisoning or anything. It’s the fact that I’m allergic to onions, garlics, chives and the rest of the allium family.
At the end of 2010, beginning of 2011 I went on a coeliac diet because we thought there was a chance of that. I went on a diary free diet too. I was living off of water and coeliac bread. Not the nicest. I was still ill.
I was seeing the hospital at the time in the childrens unit. They were not specialists in gastro. They were specialist in children. I was 15 years old and the oldest child there by 8 years roughly. They didn’t know what was wrong so discharged me when I was feeling okay for a few days and said they didn’t want me to come back and see them again. Lovely!
I went into remission for the summer and had a boyfriend. Awww. We
broke up in September 2011 because I began feeling poorly again and he would twist things and became nasty about it all. I don’t need that stress.
Then in October I went back to the doctors. I’ve seen 10 doctors probably! They’re all rubbish but now we’ve found the one. She’s brilliant and asks me to see her every two weeks to check up on things. She knows my past traumas and horrible things I’ve been through. She’s very caring and understands. I’d also like to point out, she is the ONLY GP that is allowed to look at my bum! You should see my face when other doctors ask.. pfft!
On the 27th of Dec 2011 I got really ill one evening. We almost had to call an ambulance because I couldn't move and my goodness, I was in agony.
My mum was brilliant though. I couldn't ask for a better mum/best friend. She called NHS direct (0845 46 47). [If you don't know what that is, it's where you can't go to the doctors and you don't know what to do.. whether to just drive to hospital, or call an ambulance or if you simply want pain advice] We spoke to a nurse and a doctor and because they don't know what is wrong, they can't suggest much. I passed out eventually and fell asleep.
Went to the doctor the next day, who also said that they can't do anything for me until I am a lot worse than I am - ignore the fact that I was in agony last night then
and she said that I have to wait a few months to see a specialist or wait until I am emitted to hospital when all that will help me is morphine. Silly cover Dr who doesn’t understand and asked me IBS type questions. ARGH IT IS NOT IBS.My amazing, usual doctor sent me to the hospital which is in March 2012 and I’m typing this in January 2012. Then when I began getting worse and blood tests began to show more and more concern for my health, I was bumped up the list to be seen sooner and because of the 27th Dec thing they don’t want it getting worse than that. Lovely contradicting doctors eh?!
Now, the blood tests are showing that me ESR is 35/11 which is fairly high when the healthy person has 11/11. Big gap!
I’ve been having loads of blood tests and urine tests.
Recently I began urinating blood so went to the doctors but saw another lady because my doctor wasn’t in that day. This Dr was concerned that no one has ever looked in to my kidneys. I’ve never had a blood test on them, no one has even thought about my kidneys. All that I’ve had to do with my kidneys was that in September 2011 I saw a Dr about kidney pains, and she said it was just muscular pain and there was nothing she could do about it. The pains have been getting worse and now the blood? Hmm. Also because if you remember, I had HSP when I was 10 and HSP can affect your kidneys in the long term but usually when you’re an adult – I’m 16 at the moment.
This Dr has sent for an emergency ultrasound scan on my kidneys. I’ve had one before – I didn’t like it! But they didn’t check my kidneys. They checked my bladder – not sure why to be honest. My bladder isn’t the problem with my IBD issues… hmm…
I’ve had several more blood tests this month. On Thursday I had an urgent blood test where they mucked up my vein and now it’s all big and red and bruised and bleurghhh. But it looks awesome and I was brave! Haha!
I’ve got to do more urine tests as they have found blood in my urine even though when I did this particular urine test, I couldn’t see the blood. Oh and it’s not my period!
I’m on colpamine, a stronger pain relief than Paracetamol, a medicine that counteracts the pain relief because the pain relief will make me really sick, so this one stops me being sick and feeling sick, I’m on Paracetamol too, and an antibiotic.
I’ve not taken the pain relief or the nausea stopping one because it says not to take them if you’re on an antibiotic or have kidney problems. I’d rather not take the chance. I don’t trust doctors and it wasn’t my regular doctor who told me to take them either.
To be continued… as does my life continues...
:uk_flag:
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