My rant about how unfair crohns is...

[nogutsnoglory]

Sorry I just need to vent because I just wanna break down in tears. I hate this f*#kin disease so much! I am in my 20's and feel like a weak geriatric patient with a host of medical problems. I am constantly in stress trying every damn thing I can to put this disease in remission. Every time I think I see light at the end of the tunnel, I have a more angry gut or other medical problem.

This disease is not only killing my body but it's destroying my life. I can't go out much for fear of running to the bathroom, from being weak and in pain or because I have nothing I can eat on a menu.

I know many of you are in the same boat. It sucks!

 

[Mountaingem]

Count me in as a passenger! Tt is so difficult when it seems to go from one thing to another all the time. I'm having trouble finding drugs to that will beat the beast back into remission.

I'm going to be 40 but it doesn't mean I'm ready for the rocking chair either; at times I hear people complain about minor health problems and want to tell them to shut the F**k up.

You offer so much to the people here on this forum We just gotta keep hanging on noguts...when you're at the bottom the only way you can go is up, I guess.

 

[nogutsnoglory]

It's true mountain, I like to think there is only up from here. I am a good caring person and I'd like to think I deserve at least a half chance at a decent life.

I'm glad you and other passengers are here because it would sure be a lonely and frustrating drive. The non IBD world is sympathetic but they haven't a clue.

 

[Z_Ghost]

It's a real fight, not only the Chron's but the doctors too sometime.
It's taken me 7 years and 4 doctors to find one willing to give me something other then asacol and prednisone.
I planned a trip to Yellowstone in 2009.
I had to force myself to go what with the pain and big D going one.
The drive up there was something I got to say, good thing for bar ditches a few times.
Funny thing is I had a blast up there and was planning to go again this year but had to cancel it. I am hoping I can do it next year. It's a 4000 mile trip and I drove there by myself.
I just will not let the Chron's rule my life, it may beat me down but I will find a way to get back up no matter what.
Just keep fighting it, you can win and have a great life.

 

[PattyLynn]

All of you are right - Crohn's sucks!! I know we shouldn't let it rule our lives but I can't help it. Even with an ileostomy (no need to run to the toilet at break-neck speeds) I still feel like there is so much I can't do for fear that my appliance will fall off or leak or get so full it looks like I am pregnant on only one side of my body! Even at night, in my dreams I have an ileostomy. What I wouldn't give to just be normal again. And NoGuts, you are so right, the non-IBD world has no clue. My hubby tries to be supportive and helpful but I think he is just as tired of this disease as I am. And I can't blame him.

I am so grateful I found this forum so I can vent and complain and cry to all of you and help ease the burden on my family. Please don't get me wrong, they do love me but as you know, unless you live with Crohn's, there is no way that you can fully understand the impact on a person life.

 

[gconner]

Be brave, I have had this XXXXXX disease for 37 years. Do whatever you want, just carry fresh undies and a washcloth and if you need to clean up, do it. My husband and I, in the 39 yrs. we have been married have ridden a huge harley bike all over the u.s. My doctor always put that in my chart when I told him. If I was too sick, of course, we did not go. We are now older and have stopped this, but you can overcome things, just try it and see what happens. "this too will pass" remember. It helps to have a great husband, but he doesn't like to hear me talk about it, I guess most spouses are like that. But he is always there when I need him and does housework if necessary.

i take Pentasa, 20 mgs. Pred. (at the moment, during a flare) Imodium, and Paxil and a nausea pill which helps quite a bit.

Take care everyone and let's stick together.

 

[SdN]

Yes it sucks bad... I was diagnosed in 2009 and from then until the beginning of this year my life was miserable. I'm finally in remission and I hope I stay that way for a loooong time but those 2 1/2 years were horrible! I thank God that I had a loving girlfriend who stuck by me. I know it's difficult to see when you feel miserable but there is a light at the end of the tunnel. I hope you reach it soon!

 

[changeiscertain]

It's so hard to stay positive when everything is crap. Literally. I truly feel what you're writing down, noguts. It really, really sucks.

 

[nikimazur]

I feel like I'm in a holding pattern because of it. With just being diagnosed, and trying to get things under control, I feel like I have put everything to the back burner. Like waiting to search for a new job, dating, well uh life. Everything is always wait until my Crohns is under control. Even my family/doctors have mentioned waiting for things until I'm healthy. But while trying to get healthy, life is passing me by. If I get a new job, I'll lose my amazing insurance. I just feel that for the past year, everything is wait wait wait. When I do have periods of time I feel better, within a matter of days or weeks I'm having issues and need doctors/hospital visit. It's just never ending, which is the most bothersome.

 

[Mountaingem]

Crohn's is like the slimy ex-boyfriend who always comes into your life again when your life is going along fine just to mess with your head. Everytime things start going better and I get used to be in a more normal groove-BAM! It comes out of norwhere and derails me-then I feel like I have to go back to square one.

 

[PattyLynn]

Crohn's is like the slimy ex-boyfriend who always comes into your life again when your life is going along fine just to mess with your head.

:rof::rof::rof::rof:

You hit the nail on the head!! Thanks!
Sorry guys, but this is so true!