I can only speak for what works for me.
If there was just one thing I would suggest, it would be a liquid probiotic called living streams. If you have tried quality probiotics in the past and they had any benefit whatsoever, I would wager that this would help tremendously. You only take 1-2 drops 3x a day, with or without food (morning, supper, before sleep). This is the original Living Streams Probiotic formula and can be found at livingstreamsmission.com. In my 7 years of tens of different formulas, nothing compares.
In addition to this, the next most effective treatment, which is VERY mild (1/10 the dose of it's on-label application) is called Low Dose Naltrexone. Go to the treatment section and see the top link which lists the phase i & ii studies. This can be taken with most other medications, except pain meds shouldn't be taken within ?6hrs?. Any doctor can prescribe this. I take this with my probiotic at bedtime and it definitely helps, in my case, to do so.
Your son MIGHT be able to get in on a trial Dr Sandra Bingaman (
[email protected]) is doing for pediatrics crohn's patients, up to age 17. However, this was posted in 2008 and I'm unsure of its current status
http://clinicaltrials.gov/ct2/show/NCT00715117 FYI: a company has recently taken upon itself the costs to conduct a Phase iii study, the final phase for AMA acceptance to approve LDN for crohn's as an on-label use.
After those, I would suggest enteric coated fish oil (akin to 850mg per cap of actual omega 3s, more EPA than DHA--I use source naturals ultra potency fish oil). I would take 2-4 of those a day. However, if you get past the 3-4 cap range, it MIGHT slightly thin the blood--so if internal bleeding is a concern stick with less than 3.
After that, I would say diet is the next most important factor. NO sugars except stevia and REAL honey occassionally. Later on, once things are under control, maybe add cane sugar every once in awhile. Next I would cut out any and all processed foods, meaning eat whole fruits and veges etc. nothing boxed unless there are NO preservatives. Next I would avoid trans fats completely. Personally, I avoid GMOs like the plague. Eat organics to avoid pesticides, preservatives, GMOs etc which all mess with digestion, or find out which non-organics have the least residues. The book Nourishing Traditions has good recipies.
I would also try papaya enzymes, chew 1 or 2 with every bigger meal. I use a NOW product. Surf the net to find big warehouse retailers selling these brands at 30% off.
Maybe the first thing to do is enteral nutrition which is a great way to get into remission. Keep surfing this site for more info on any and all the info I listed above. Good luck.