- Joined
- Nov 15, 2012
- Messages
- 204
At the end of August, I developed a pain in my butt and after a few days, it started draining and after a week, the whole thing was gone. I had no idea what it was, but once it was gone, I was relieved and didn't think anything of it. I thought maybe it was an internal hemorrhoid or something, was quite embarrassed about it and was very relieved when it went away.
Three weeks later, on Sept 15th(this year), I had a lot of diarrhea and stomach pain, and the next day my butt was hurting again. I saw my GP on Friday, and she said it was an abscess, and that it sounded like it would drain, but to come back it got worse.
Everything got worse over the weekend, could barely eat as everything caused a lot pain, and the pain was really bad in my butt (edge of right cheek) so I went back to my GP and she prescribed two antibiotics.
The next day I went to the ER (my Dr. advised I would likely need it drained as it was not draining on it's own)
I spent the night in the ER ward and found out I needed surgery, which they did the next day. They did a ct scan the first night, and took my history. I felt so much better after surgery in both bum area and stomach area(since I hadn't eaten in a couple days)
The third morning, (day after surgery) a Dr. came to my bedside at 6:30am and said he wanted to look at the area. Without telling me, he ripped out the packing while I hollered in pain.
Later that morning, I met my GI and he told me I have Crohns. I was shocked, I always thought my tummy issues were lactoid intolerance, although in the last couple of years I had week long episodes that were pretty bad with my stomach. But when they went away, I didn't worry, neither did my Dr.
So I went home and recovered from surgery and went back to work after about a week or so. Less than a week later, the abscess flared up again, unbearable pain, and fever. So back to the ER and had surgery again.
Recovered again...back to work about ten days later... first week left early most days. Currently back full days
Abscess is considerably smaller and still draining.
Started Imuran, and when I got up to 100mg, I started feeling pretty nauseaus, by Friday I was up to 150mg(as per Dr.) and it was awful!! Completely nauseated to the point I had to go to bed with gravol for several hours during the day, couldn't eat, became weak because of that. I dropped doasge back down to 50 and have felt better each day since. Dr. says to stay a week on that, then add 25mg a week later, etc, and only take what I can tolerate.
After several phone calls over the last couple of weeks, I was finally approved today to get 80% coverage for Remicade, and should begin soon. I am a little worried on what my pay portion will be.
I ate the best supper last night that I have eaten in about 7 weeks(by best, I mean normal portions) so I am really relieved to be able to eat again. I was so repulsed by food while sick. It did cause quite a bit of pain though, so I think I'll stick to half meals.
I am still doing three sitz baths a day, on my 7th week of antibiotics, and my energy levels way down. It doesn't help that I quit caffeine. lol
I look forward to spending time here, learning and having people who understand what I am going through. People seem to think that if we watch what we eat and we will be fine, and they know somebody with Crohn's and they are completely fine. I am starting to think that's not necessarily true!
Three weeks later, on Sept 15th(this year), I had a lot of diarrhea and stomach pain, and the next day my butt was hurting again. I saw my GP on Friday, and she said it was an abscess, and that it sounded like it would drain, but to come back it got worse.
Everything got worse over the weekend, could barely eat as everything caused a lot pain, and the pain was really bad in my butt (edge of right cheek) so I went back to my GP and she prescribed two antibiotics.
The next day I went to the ER (my Dr. advised I would likely need it drained as it was not draining on it's own)
I spent the night in the ER ward and found out I needed surgery, which they did the next day. They did a ct scan the first night, and took my history. I felt so much better after surgery in both bum area and stomach area(since I hadn't eaten in a couple days)
The third morning, (day after surgery) a Dr. came to my bedside at 6:30am and said he wanted to look at the area. Without telling me, he ripped out the packing while I hollered in pain.
Later that morning, I met my GI and he told me I have Crohns. I was shocked, I always thought my tummy issues were lactoid intolerance, although in the last couple of years I had week long episodes that were pretty bad with my stomach. But when they went away, I didn't worry, neither did my Dr.
So I went home and recovered from surgery and went back to work after about a week or so. Less than a week later, the abscess flared up again, unbearable pain, and fever. So back to the ER and had surgery again.
Recovered again...back to work about ten days later... first week left early most days. Currently back full days
Abscess is considerably smaller and still draining.
Started Imuran, and when I got up to 100mg, I started feeling pretty nauseaus, by Friday I was up to 150mg(as per Dr.) and it was awful!! Completely nauseated to the point I had to go to bed with gravol for several hours during the day, couldn't eat, became weak because of that. I dropped doasge back down to 50 and have felt better each day since. Dr. says to stay a week on that, then add 25mg a week later, etc, and only take what I can tolerate.
After several phone calls over the last couple of weeks, I was finally approved today to get 80% coverage for Remicade, and should begin soon. I am a little worried on what my pay portion will be.
I ate the best supper last night that I have eaten in about 7 weeks(by best, I mean normal portions) so I am really relieved to be able to eat again. I was so repulsed by food while sick. It did cause quite a bit of pain though, so I think I'll stick to half meals.
I am still doing three sitz baths a day, on my 7th week of antibiotics, and my energy levels way down. It doesn't help that I quit caffeine. lol
I look forward to spending time here, learning and having people who understand what I am going through. People seem to think that if we watch what we eat and we will be fine, and they know somebody with Crohn's and they are completely fine. I am starting to think that's not necessarily true!
