Hi Everyone. I was first diagnosed in the late 1980's with Crohns after a series of bad and misdiagnosed conditions, by this time I was seriously anemic and was hospitalized for blood transfusions, I also lost over 30 lbs and was referred to a dietitian to help gain weight! I was treated for successive flare ups with steroids with a pleasant remission during the pregnant years. After moving a couple of times we settled in Bedfordshire and following another flare up I was referred to a wonderful GI doctor that treats the person and not the symptoms, he suggested surgery to remove the affected areas of colon and this was done in 1995. From then I had no serious Crohns flare ups, although I did suffer with Gall Bladder problems and serious eye problems stemming from undetected inflammation in the eye. Ultimately this lead to one detached retina in late 1990's and the other with Glaucoma and subsequent operation in 2009. But in my mind I have been in remission (or possibly just denial ) since the late 1990's.
All that has stopped as I had to go to my GP last week following many weeks of really bad diarrhea. My GP immediately said this was the Crohns and put me back on steroids - bad plan as this could seriously affect my one good eye that had the recent Glaucoma! Reluctantly he has now put me on Pentasa instead and at my insistence a referral back to my wonderful GI doctor. I am not convinced this is Crohns back as I am not experiencing any reall pain, just mild stomach discomfort, general fatigue, less of appetite and weight loss. I have made the big mistake of reading up on different internet sites and worried the hell out of myself that it could be colon cancer and not Crohns, silly I know but we all do these things. So thats me - waiting for the appointment to come around in April and hoping I dont run out of loo rolls !!!!
All that has stopped as I had to go to my GP last week following many weeks of really bad diarrhea. My GP immediately said this was the Crohns and put me back on steroids - bad plan as this could seriously affect my one good eye that had the recent Glaucoma! Reluctantly he has now put me on Pentasa instead and at my insistence a referral back to my wonderful GI doctor. I am not convinced this is Crohns back as I am not experiencing any reall pain, just mild stomach discomfort, general fatigue, less of appetite and weight loss. I have made the big mistake of reading up on different internet sites and worried the hell out of myself that it could be colon cancer and not Crohns, silly I know but we all do these things. So thats me - waiting for the appointment to come around in April and hoping I dont run out of loo rolls !!!!
. Alot of people get scared it could be Cancer, but as long has you have colonscopies to prove otherwise and no cure from Crohns you can get symptoms anytime anywhere. I would have a scope with biopsies because ignoring it or thinking it isnt there, it could be there and brewing. I found that when I was young, everytime I moved I got a mysterious "flu" and moving, death and divorce are the 3 main huge stressors. Look after yourself and go see your Gi about your concerns. Good luck, keep us posted.:smile:
