My Story

Crohn's Disease Forum

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Joined
Apr 9, 2011
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7
This is my first time posting on the forum, although I've read it for about a year now. Long story short...
I was a senior in high school when I first started to have GI trouble (no one in my family had ever had any sort of GI disease). I went to my pediatrician, she did a stool sample, and found that I was infected with C.Diff. That was November of 2007. I went on an intense course of antibiotics, but the diarrhea did not stop. I would use the bathroom upwards of 20 times a day and 5-10 times a night. I suffered from debilitating pain that would stop me from getting out of bed in the morning. Once the C.Diff tests began coming back negative, my mom and I made many ER visits with no success. Each time they would say that it was just indigestion or menstrual cramps. Then in April of 2008, I consented to have a colonoscopy/endoscopy done to hopefully end the suffering. I was then diagnosed with moderate-severe Crohn's Disease in my terminal ileum in May of 2008 (coincidentally the day of my senior prom).
Since then, I have almost completed 3 years of nursing school at Case Western in Cleveland, OH. I have tried every medication in the book (asacol, entocort, prednisone, 6-mp, humira, and every combination thereof). Nothing has been successful. Luckily, being the strong-willed person I am, I have not let myself be completely controlled by the disease. I have had wonderful success in school and am the top of my class.
However, I was recently admitted to the hospital with bloody diarrhea and severe pain. I went for my third colonoscopy and was told that my disease is now fibrotic, so medications cannot reverse it. My doctor had always mentioned surgery as an option, but now it's a must. I'm looking at doing the resection this May so I can stay on track with school. Although I'm nervous, I really can't wait to have this awful disease removed and hopefully have a few months, years, or decades of a normal life!
My parents and boyfriend of 2.5 years are so supportive, but it's difficult for me to explain the type of pain I experience to them. I am so happy to be a part of this forum where we can all understand each others sufferings and accomplishments! :)
 
Welcome!
You will find so much good information and many helpful members. I am very new at this, but am so glad I found this site. Congrats on your excellent grades!!
 
Hi, and welcome to the forum. I hope the upcoming surgery does the trick for you. My last surgery certainly fixed me up.

Looking forward to hearing all about it.
 
Welcome to the forum!! :bigwave: you have been reading for a year on here??? My, you must be shy lol. I have been here 3 years and still find new and updated stuff on here, lots of great people to help you... good luck on your journey!
 
Hi tpola and welcome! You should be really proud of yourself for doing so well in school while battling Crohn's disease. And your attitude hasn't suffered at all either. You truly are a strong lady.

I wish you luck with your surgery in May. I hope it gives you relief for many, many years. Please keep us up to date!
 
Hi tpola
and welcome

And we're happy to have you after a year of lurking!
You have done so well, your family must be so proud of you, well done hun!
I wish you lotsa luck on your up n coming surgery, come back and let us know how you are.
lotsa luv
Joan xxx
 
Hi Tpola and welcome!

First, I admire nurses so much, and you for being able to stick with it the past three years. Kudos to you. I hope you are able to complete your studies on time.

Surgery can be scary, but taking out the bad stuff will give you a shot at a normal life and feeling better. You'll find TONS of information on here from folks that have had resections, what to expect, what to look out for, etc etc.

You are not alone! Whatever's going on, there's at least one person on this forum that has been thru it!

Good luck - keep us posted on your surgery date and progress.

- Amy
 
My spouse is going through the same thing right now. I applaud you for getting through nursing school. Ask your GI doc about going on a biologic (like Humira or Remicade) after your surgery to attempt to protect the healthy bowel you still have.

Dr. S (spouse of a Crohn's sufferer)
************
Humira twice weekly
6-MP
Asacol
Gingerforce
Probiotics
Aloe Vera
Senna/Miralax
 
Hi Dr. S!
I was on Humira for 3 months, but I suffered from extreme/rare side effects such as numbness in my extremities, heart palpitations, etc. It also didn't seem to help at all. I haven't decided what treatment to try after the surgery since nothing has worked so far. Also, Remicade and Humira are both thought to increase the patient's risk of cancer later in life. Thanks for the support though! Good luck to you and your spouse!
-Tessa
 
Hi everyone,

I hope you had a wonderful and relaxing Memorial Day weekend!
I just wanted to send a quick update since I finally met with a surgeon last week. After a great deal of thought and prayer, I have decided to schedule a small/large bowel resection for next Monday (June 6th). The surgeon I met with was very knowledgeable and confident that he could perform the procedure successfully using a minimally invasive technique.
I'm very excited about my decision and keeping my fingers crossed that it's the treatment I've been searching for over the past three years!
I hope that you will keep me in your thoughts and prayers in the upcoming weeks as I prepare for and recover from the procedure.
Thank you for all the support you have given me throughout my journey!

Sincerely,
Tessa
 
Hiya Tessa

Sending lotsa good luck your way!
Hope it's the solution to all your troubles
Speedy recovery and let us know how you are after
xxx
 
I wish you good luck on your surgery! And nice job in school. I know that's tough, but you did it! Awesome job!
 
Tessa, here's wishing you a successful surgery and a speedy recovery! And a big wish that surgery does the trick for you for a very long time!

:thumright:
Misty
 

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