My Story

[Jazzy182]

Hi all,
I'm glad I found this forum, its so good to be able to share information with others who are in the same situation.
My story started in 2007 when I was diagnosed with UC (after 3 long weeks of various Drs trying to convince me I had food poisoning). Luckily I found the most wonderful GI who I believe has saved me (both physically and emotionally). So far I seem to have flare ups every 6 months... which come back under control within days with taking prednisolone. I'm currently taking colazide to keep me in remission but if it doesn't last long then my GI wants to put me on mercaptopurine. But we are holding off on this as we are trying for another baby.
Can I just ask if anyone else has heard of a link between IBD and a higher risk of blood clots? The reason I ask is that after the birth of my first child, I had a really bad flare then I also developed a DVT in my leg which travelled to my lungs. When I saw a haemotologist for this, he said my UC which causes increased inflammation levels when flared was part of the reason I developed a clot. It was all very scary but I try and keep myself well informed and hopefully won't ever go through that again.
Thanks for taking the time to get to know me, I can see myself coming on here a lot reading through everyones stories.

 

[mikeyarmo]

Hi Jazzy182,

We are glad you found us also!

I am happy you were able to find a really great GI. I have not realy heard about IBD and linkages to blood clots before, but I guess it is possible (especially since the maemotologist brought it up).

Looking forward to seing you around!

 

[xJillx]

Hi Jazzy and welcome! I hope your remission continues and you are able to expand your family soon! And, yes, those with Crohn's are at a higher risk for blood clots. Therefore, for example, women with Crohn's are usually discouraged from taking birth control, which also can cause clots. Granted, I do take birth control and my GI hasn't told me to stop.

 

[ameslouise]

HI Jazzy and welcome!

Good luck with the new treatment plan, and with trying for a 2nd child! Hope all works out well.

- Amy

 

[bruscar]

Hi Jazzy,

Welcome aboard, good luck with everything !

 

[Jazzy182]

Thanks for the warm welcome everyone
Jill - thanks for that, there isn't a great lot of info about the link between the two, I seem to get different opinions from different Drs. I stopped taking the birth control pill when I was dx with the DVT and won't be allowed to take it again.