Hi, my story of crohns goes back to my teen years and I am now in my 50's. When I was younger and had flare ups the doctors back then would just say I had a irritable bowel. This was back in the 70's and I wasn't diagnosed until 2000. I know how frustrating it can be for tests to come back negative but still have flare ups. I just had an MRI with contrast and it didn't show anything, yet I am still having severe flare ups and getting ready to start Humira. All of the other medicinces I have been on for crohns have stopped working. I have dealt with this disease for many years and my crohns is now so active that I have lost 40 pounds in the last few months, yet my tests come back not showing anything new. I used to let it control me, but now I do things that I thought I would never be able to do. I just took control of my life instead of letting the disease control me. Sure there are still times when I am confined to home because of the flare ups but with newer drugs out there I am finally able to live a more full life. The best advice I can give anyone is don't give up and keep fighting, because you can get it under control. I haven't fully got there yet but I am still fighting and I have beat it back even while dealing with cancer and heart disease. Good luck to you all and God Bless you.
My Story
- Thread starter rab1257
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mikeyarmo
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Hi rab1257,
Welcome to the forum. I am sorry to hear you have had to deal with this disease for such a long period of time. Your strength should be commended for being so strong willed and determined after facing so much.
I am glad you have found us now and am sure you have a lot that you can share based on your experiences.
Welcome to the forum. I am sorry to hear you have had to deal with this disease for such a long period of time. Your strength should be commended for being so strong willed and determined after facing so much.
I am glad you have found us now and am sure you have a lot that you can share based on your experiences.
I too am sorry this has been going on for so long - a terrible life long disease, but i hope the humira will give you relief. I am starting it next week, after being diagnosed 10 years ago when I first starting feeling the symptoms at age 9. Let us know if you start getting relief from humira. Also, god bless you for having so many other medical problems and being able to beat them back. I wish you luck and health
