L
ls1mtz
Guest
My story, I am a 27 year old male from Ft. Myers, FL. I was diagnosed with Chron’s disease at age 18. The initial signs prior to diagnosis were vomiting, blood in stool and weight drop. It’s been so long I will do my best to remember how the initial treatment progressed…. I was put on prednisone and asacol followed by 6mp. I remember having a phisher or fistula, can’t remember which. I just recall serious pain and barley being able to sit. I was given some blue and yellow pain pills and suppositories that I had to put up my butt to dissolve. Luckily, it all only lasted for about 2 years… about the same time my girlfriend of 5 years was leaving me for another guy; I started feeling great and went into remission. I thought that was kind of strange but hey I was feeling better. I had a good 5 years of remission with no medication at all. I was eating and drinking whatever I wanted, it was the life! So now more current and not as lucky; I started having a lot of stomach pain, blood in stool, weakness, vomiting and weight loss. I went back to the same GI and was treated with 15mg of prednisone and 3 pills 3 times a day of asacol. The medication never made me feel better and I noticed I was getting out of breath easy and very fatigued. After several blood test and trips to the GI, I was put on liquid iron because of serious anemia from the Chron’s. The next thing I know, I was fainting for no reason. My stomach would be hurting and on my way to the bathroom things would get dark and I’d be on the ground. One morning I fell and I was too weak to get up, every time I lifted my head I would black out. I guess I fell asleep laying there because the next thing I know my girlfriend is yelling at me to get off the floor that she has to get ready for an eye appointment. She is not very compassionate and has no idea that people can be sick enough to not want to go out partying every second of the day! (That’s another story for another time) So finally she realizes that I am seriously messed up and she calls the ambulance. I was rushed to the hospital where my blood test revealed that my hemoglobin was at 5 something and I was basically bleeding to death. After four blood transfusions I got the joy of listening to my girlfriend bitch about how I am going to have Hepatitis C from the blood transfusions and she is going to get it. (So concerned about me) I was put on the cardio floor because I guess you can have a heart attack easy when your blood is so low. I saw a GI Dr. who put me on tons of steroids (90mg every 8 hours) I was gradually reduced to 40mg per day by time I was discharged. Once I was discharged I saw my normal GI doctor who had me start reducing my steroids by 5mg every 2 weeks. I felt great until I got to 15mg. So now I am on 50mg of 6mp as well as the steroids. No luck so far, still feel bad and have been on these doses for 6months. Now I have a new pain; It is pressure on my tail bone and pain going down my butt into my right upper thigh muscle. I get night sweats and the pain in my legs is so bad at night that I pretty much live on pain pills. I have been to 5 different doctors and no luck yet. My hemoglobin also keeps dropping and I’m losing more weight. The battle continues….
