My Story

Crohn's Disease Forum

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Joined
Feb 8, 2010
Messages
101
I have had Diarrhea and cramping way back since childhood. 1st barium enema was about 8th grade (nothing). Had stretches of no problems/ problems until 1992-93 when I had a mega Symtom. Where the Small and Large Intestine Come Together, became almost Completely Blocked. (Crohns)
Surgery was quick, about a month because, prednisone Can't Cure All.
I had about 4 years of feeling fairly decent. Have had Some kind of Symtom Ever Since.
Hemorrhoid Surgery about 1998, Tolerated them a LONG time. Thier Back Again!
I'm Told Prolapsed Hemorrhoids? looked it up, Yuk.
Crohns, IBS. Kinda hard to Tell The Difference between Crohns and IBS, if Crohns isn't Moderate to Severe? Fiber no Fiber?
I did Case Study Trials for Pentasa and Remicade.
I will Bring up Depression, It's a Fact in my Life. Meds for it Too.
Deal with it and See a Behavioral therapist Since 2001.
I'm OK Though just have to Accept limmitations are the way it is!
Had Surgery again in summer 2008 Same Spot as Original Surgery, Scar tissue Had my Intestine Down to the size of a Head of a Pin! Thier Words!
I Think This is IMPORTANT! I Told The GI and Surgeon I Felt There Was Active Crohns! I Was Told The White Count Was OK and The (CRP) (ESR) Test for Inflamation were also OK.
After Surgery It was Found Beyond The Blockage There Was MODERATE Crohns! (Removed) Still Wonder about New scar tissue in small intestine?
(I believe Disease can be Active but, Not Detected!) Was In My Case!
I think This Disease can Fool The Best!
TP-TP-TP, Toilet paper! A Must. Won't Eat after 5pm, Irritable Bowel.
Miss my Mountain Dew! Popcorn Tooooooo!
When I had my 1st surgery there was a guy on the same Floor, He had been there for 6 weeks, Drinking ensure and being Fed Intravenously. He also had been home for a Year and a Half Prior to being in the Hospital when I was There, Trying to Gain 10 Pounds so he Would or Could have Surgery.
I Think about him Because his Surgery was a Success and how much Worse off I could be..
Have to Intentionally constipate now with questron to get relief from swelling and pain. And about every 2-3 days have a Down day and night. Not in total control?
I am fortunate to have a cousin that gives me part time stuff at an apple orchard, and Misc.
Enbrel Arthritis, so I went off immuran cause of White count issue. Questran, celebrex, topiramate (migraines) sumotriptan-Migraines , cipro 500mg-Bacteria scar tissue small intestine, prilosec, b-12 shot, remeron, loperamide, zolpiden
Don't Think the GI was happy about the Enbrel????
My motto,, Things could be Worse! I apologize if I whine to Much.
Thanks for your time....
 
:welcome: OA!! Glad you have found us - sounds like you have been through a lot. Lots of information here - just use the search function if you have questions to see if we have addressed it, or start a new thread under one of the sections and we'll be happy to help!
 
:welcome: Orchard.....You are right when you say things could be worse....You have been through a lot. Sometimes,staying positive is the best thing we can do.
 
:welcome: Welcome, Boy you have had a hard time . Thanks for shareing your story. I deal with depresstion also and It can be really hard at times I'm glad you see someone for it .Does it make a difference? Keep reading threads you will find lots of help here. and No your were not Whining so no need to apologize:)
 
Welcome to the forum :) You have indeed been through a lot! You'll find this place great for information and friendship, so glad you have found us :)
 
Hi all, Thanks for The Replies and Welcomes.
I have read alot of the Threads.
There is alot of compassion and Wisdom here!
Wish you all Well, Ryne.......
 
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