My thoughts after starting Humira

[afidz]

For the most part, everyone knows what I have been through, what I am going through and what my near future looks like. Its been rough.
I just started Humira last night and HOLY CRAP I feel like a new person.
Words really can not express the emotion I am feeling.
I was going to the bathroom and I stood up without using my arms to pull or push up. I don't remember the last time that I just "stood up".
So after I realized how great I felt, I then got really sad. I felt sad for myself that I accepted pain as normal. That I let myself feel so awful for so long. That I let myself be so immobile so long.
So after I got done feeling sad for myself, I felt sad for all of us. Because this is our lives. Pain IS normal. I have had such a wonderful response to Humira, its already significantly improved my health. But its not that easy to everyone. It makes me cry thinking about what it means to be chronically sick. We all lead such complicated painful lives and no one understands. I wish it didn't have to be this way, I wish that they would find a cure and save us all from the pain we go through.
EDIT: My computer is trying to restart to update without my permission so I have to end this post before it does. But y'all get where I am going with this. I will post again in a little while!

 

[MikeinBklyn]

Yep, I know how you feel.

Good Luck

 

[SupportiveMom]

Fantastic you are feeling better with Humira! May you have many more days feeling great.

You are right about accepting the pain, symptoms, loss of life as we once knew it. It is important to remember we can't give up hope, have to continue to fight, and pray one day there is a cure.

Enjoy your new found mobility! Don't sit too long in the sorrow. We all get back there way to quick with this disease. Go enjoy!!

 

[Rocking on]

hello Op

i have only posted here a few times. i dont know your story but my guess is it's erily similar to mine. i have remained on prednisone for 16 years due to crohns. For one reason or another, i was not able to start humira. Staph infections, cdiff, cancerous tumor on my kidney, fistulas...so many problems.

Last month i crashed hard and found myself at the Mayo for a week. The docs made it pretty clear...die of prednisone use or accept total colon removal. My body couldnt stay on the current path any longer. The last ten years have been pretty miserable. my doc knows i will only accept the bag if it's life or death. He said he could patch me up one more time just try try humira. So after draining an abscess, inserting a seton, and a week of solumedrol, i was sent home with the humira. my first 4 shots were last friday.

So far, i am pleased with the results. I have far more energy and actually have some motivation to get back into shape. A lot of my pain is gone, and i dont seem to have the ravenous appetites I had before. if things keep progressing like this for me, i too will be sad and angry for the last ten years of hell that maybe could have been avoided. The day i drop a solid deuce will be the day i write personal thank you letters to every humira employee.