about a month and half ago I started to pass some mucus that turned into bloody mucus. I didn't experience pain or weight loss, I have had blood tests done that came back normal, I had a colonoscopy that showed some mild inflammation in three different areas of my colon. biopsies were taken. In recovery from the colonoscopy the dr. said it looked like really mild crohn's but would know more when the biopsies came back...well the biopsies came back and showed no signs of crohn's. pathologist labeled it transient colitis and the colorectal surgeon prescribed 7 days of flagyl and a month of asacol. so now i'm a nervous wreck. the dr. said it could still be crohn's but the only symptom I have is the blood and mucus. after 6 days of flagyl the bleeding has stopped. I'm just scared and don't know what to think. anybody got any thoughts?
Need some advice please!!
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Crohn's can cause those symptoms, but biopsies are the way to get a diagnosis. It sounds like you have been diagnosed with IBD, but that your results are unfortunately inconclusive regarding the type of IBD you have at the moment, which does happen to some people. However, there are some positives in your situation: you're receiving treatment, and it sounds like it's helping, and your condition doesn't sound too serious. Future tests may provide you with a more definitive answer.
What is it that is scaring you, specifically? Do you have another appointment booked? If you speak to your doctor, don't hesitate to tell him your concerns and about your confusion about your diagnosis.You could ask for a referral for a second opinion if you feel like your colorectal surgeon isn't helping enough, though if the test results aren't clear there may not be much more he can tell you at the moment.
What is it that is scaring you, specifically? Do you have another appointment booked? If you speak to your doctor, don't hesitate to tell him your concerns and about your confusion about your diagnosis.You could ask for a referral for a second opinion if you feel like your colorectal surgeon isn't helping enough, though if the test results aren't clear there may not be much more he can tell you at the moment.
I guess what's scaring me is that right now I don't feel bad. I'm not sick. I haven't lost weight and I don't go to the bathroom all the time. I was just passing some blood one day out of the blue and now I have been told by one guy that did the scope that it could be a life long disease with no cure but he has no proof of that other than his opinion. Now the bleeding has stopped and instead of being relieved I'm just kinda waiting for it all to fall apart.
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I understand, but try not to worry about something that may never happen. This is all very new to you. It's very common to feel particularly scared when you first experience symptoms or get given a diagnosis like IBD. It takes time to get your head round it. At the moment it's still a shock to you. Give yourself some time, a few more weeks maybe, and you may start to find your life going back to normal again, not necessarily because your symptoms go away or because you get a clear diagnosis or because Crohn's gets ruled out through further testing, but because living with the knowledge that you have IBD becomes more familiar. You'll probably learn quite a bit more about it, and won't feel the fear that comes from facing the unknown. Many people here have gone through a similar process of mental adjustment.
That said, if the biopsies showed no sign of Crohn's, that's more significant than the doctor's suggestion that you may have Crohn's - and it sounds like the doctor feels that way about it too, since he said the biopsies would allow him to know more. Biopsies provide better information than what the doctor sees when doing a scope. So "transient colitis" is your diagnosis at present, which means temporary inflammation of the colon. It's a vague diagnosis as it doesn't specify the type of inflammation, but I think at the moment there's little reason to worry you may develop severe Crohn's disease - even when the doctor thought the inflammation looked like Crohn's he said it was mild.
At the moment it doesn't seem like there's much reason to worry that you may go on to develop severe Crohn's. Another appointment to discuss this with your doctor may help you. Even if this isn't just a temporary condition and you do develop symptoms again, don't panic; just report them to your doctor. IBD is treatable, you will manage. For now, enjoy being symptom-free.
That said, if the biopsies showed no sign of Crohn's, that's more significant than the doctor's suggestion that you may have Crohn's - and it sounds like the doctor feels that way about it too, since he said the biopsies would allow him to know more. Biopsies provide better information than what the doctor sees when doing a scope. So "transient colitis" is your diagnosis at present, which means temporary inflammation of the colon. It's a vague diagnosis as it doesn't specify the type of inflammation, but I think at the moment there's little reason to worry you may develop severe Crohn's disease - even when the doctor thought the inflammation looked like Crohn's he said it was mild.
At the moment it doesn't seem like there's much reason to worry that you may go on to develop severe Crohn's. Another appointment to discuss this with your doctor may help you. Even if this isn't just a temporary condition and you do develop symptoms again, don't panic; just report them to your doctor. IBD is treatable, you will manage. For now, enjoy being symptom-free.
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