I was recently diagnosed, spent the entire summer in bed, and around 40 days in the hospital, and lost around 65 pounds. It took many tries for my doctors to find a treatment that worked. They said I had an especially resistant case of Crohn's. Things have really been beginning to get better but the mental strain of things has really been weighing on me. I'm 21 years old and I'm currently taking time off of school due to Crohn's. Mostly I have been having problems with the more embarrassing parts of Crohn's. I'm afraid to leave the house, and now I'm getting to the point of not wanting to eat at all. All throughout the ordeal when asked if I if I was sad about the situation I just kept saying "its happening for a reason" or "its part of a plan". People kept telling me how brave I was. But I wasn't trying to be brave, I was trying to be positive. I don't feel very brave anymore. I think I am beginning to become depressed. Perhaps it sounds like I'm whining and it probably does. I know there are a lot worse things you can have, than this disease. But at this point I just want to get on with my life. Has anyone experienced feelings like this? And can anyone offer any advice on coping with these feelings of anxiety and sadness? I just want to live again.
Need Some Support
- Thread starter spongebob
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Help Support Crohn's Disease Forum:
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- Dec 31, 2010
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Hi Spongebob
I'm really sorry to hear about your diagnosis but I'm glad you found us here on the forum. I think all of us on here will identify with how you are feeling. You're not whining - you're admitting that you are feeling down and we all get like that at times. We're hear to listen and help if we can.
What meds are you on and you say they are helping? It might also be worth talking to your GP about how you are feeling as they could prescribe something for you, even if it is for the short term to see you through this.
Do you have family and/or friends that you can talk to? It can be a very lonely disease as non-sufferers can't always appreciate the physical and mental impact. It might be worth your while having a look at the NACC website to see if there is a local support group in your area.
Hang in there and come and talk to us here any time you need to. Big hugs.
I'm really sorry to hear about your diagnosis but I'm glad you found us here on the forum. I think all of us on here will identify with how you are feeling. You're not whining - you're admitting that you are feeling down and we all get like that at times. We're hear to listen and help if we can.
What meds are you on and you say they are helping? It might also be worth talking to your GP about how you are feeling as they could prescribe something for you, even if it is for the short term to see you through this.
Do you have family and/or friends that you can talk to? It can be a very lonely disease as non-sufferers can't always appreciate the physical and mental impact. It might be worth your while having a look at the NACC website to see if there is a local support group in your area.
Hang in there and come and talk to us here any time you need to. Big hugs.
Thank you for your response and kind words. I am currently on mercaptopurine, tapering off of prednisone and I've had 4 remicade infusions, the next one is in november. I have a prescription for Cymbalta that my doctor gave me that I have yet to fill. But I'm hesitant to use it because I don't like drugs, but if it helps I may consider it. I should mention the side effects I'm experiencing that are contributing to the downs I'm feeling. I'm currently losing my hair at an alarming rate from medication (which medication I haven't a clue), I have a facial rash and facial bloating. I am very close to my family and they have been wonderful and supportive. I just feel that I've put them through enough and I don't want to trouble them with my problems. Thanks again.
- Joined
- Sep 27, 2011
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- 69
hi spongebob, hope u feel well soon, i feel the same aswell most days, even though you sound pretty low atm, you have to look up as hard as it sounds, this forum provides alot of support for me, have a read around, your not alone in this at all. Im on sertraline 200mg for my depression although i have suffered with depression for a long time its got worse since iv been told i have crohns, i think the best support is believeing your self and that everything will be ok, i bet i speak for us all when i say we feel embarassed at times, but i take wet wipes out with me and a change of clothes just incase the dreded accident happens, maybe talk to your GP about your feelings and see if theres any local supports groups etc thats you could go to, its nice to have people around you who have the same problem. But dont be affraid to be yourself and dont let this disease control your life like i do most of the time!hope you feel better soon mate xxx
