- Joined
- Jul 23, 2010
- Messages
- 5
Hello, my name is Lisa. I am 45 years old. Mother to 3 kids, 23 year old daughter, 22 year old daughter, 14 year old son. I also have a granddaughter who is 1 1/2. I was diagnosed 12 years ago with Crohns/colitis. I am prednisone dependent. That has been the worst, because my doctors want me to try every new thing that comes around and at the same time they start reducing my prednisone and I end up sick as a dog. I like it much better when they leave my meds. alone. I know the pred. is bad for my body and I do want something to get me off of it. But I would rather my docs. give a new medicine a chance to get in my system, see how my body reacts to it and then maybe start tapering the pred.
I take about 40 pills a day and get remicade treatments every 8 weeks. I wonder about the remicade since they don't know the long term side effects. But I will just have to worry about that if I get old enough to think about long term effects of anything. We are not guaranteed any moment of this life. Every second, minute, hour and day is a gift.
I hate that my son never new the "healthy" me. He was so young when I got sick that he only knows the sick me. I was so different back then. So active and always doing something.
I am kind of freaked out right now because I just got blood work done last week and it came back showing that my body is producing too many red blood cells which can make my blood too thick and cause a stroke or heart attack. I don't need to have anything else wrong with me. I don't want anything else to be wrong with me. Any one on here have that problem? too many red blood cells? My doctor called it polycythemia.
Would love to talk to someone like me.
Thanks for reading, Lisa
I take about 40 pills a day and get remicade treatments every 8 weeks. I wonder about the remicade since they don't know the long term side effects. But I will just have to worry about that if I get old enough to think about long term effects of anything. We are not guaranteed any moment of this life. Every second, minute, hour and day is a gift.
I hate that my son never new the "healthy" me. He was so young when I got sick that he only knows the sick me. I was so different back then. So active and always doing something.
I am kind of freaked out right now because I just got blood work done last week and it came back showing that my body is producing too many red blood cells which can make my blood too thick and cause a stroke or heart attack. I don't need to have anything else wrong with me. I don't want anything else to be wrong with me. Any one on here have that problem? too many red blood cells? My doctor called it polycythemia.
Would love to talk to someone like me.
Thanks for reading, Lisa
.
