New here, my story

Crohn's Disease Forum

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Joined
Jan 27, 2009
Messages
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Hello everybody!

I'm new here, and still fairly new to Crohn's. I'm 18 now, and I was diagnosed at 16. I guess i'll tell my story if anyone wants to hear.

I was diagnosed in the late spring of 2007, but i had symptoms of the disease for months before that . . . one symptom for a whole year before that. I hid my symptoms from my family, but they were kind of aware of it, since they would tease me about some of my symptoms. I also became Lactose intolerant at the same time my Crohn's disease set in, so that kind of made me think i was allergic to dairy products. When I got rid of dairy from my diet, I got a little better, but i found it wasn't all the dairy. So i started eating a healthier diet-- wheats, raw veggies, nuts, and other things that are terrible for Crohn's! so i was getting worse . . .

My family soon noticed that i was in pain more than often, I was becoming more and more depressed, and at Easter my extended family asked my mom why i didn't eat, why i didn't really talk, and why i looked terrible? It was around that time, since i was really religious at the time, i thought God was punishing me. I thought he was punishing me because i was lying to my friends (Because i was in the closet) So i tried coming out to my friends, but it was stressful and didn't work; no one believed me i was gay.

So about a month after that i was fed up and asked my mom to take me to the doctor. She had already been aware i was having intestinal problems, and she had already set me up an appointment with a Gastro, but it was about a month away, so i had to wait more. When the appointment came, i told him all my symptoms, and he had some theories, but he wanted a colonoscopy to see what it really was. So i had to what another two weeks for that, and boy did i hate taking that lax . . .

Afterwards, even before i was fully conscious from the anesthesia, he told my parents he was 99% sure i had crohn's, and showed them pictures of my intestines. It was like a winter wonderland of ulcers.

I had battled Crohn's so far with Prednisone, Pentasa, 6MP, and others I i took and had no effect. I went into Remission that winter after a long summer of terrible pain. But yea, i came out to my friends around that time and it seemed like my Crohn's subsided after that, too. Ever since then i've had small symptoms, here and there, but for the most part I'm in a full remission. I fear the day my Crohn's comes back, and i hope for everyone out there the best. This disease sucks, and it's a terrible thing to go through. I'm all ears if anyone wants to talk about it, or anything.
 
Gustav2127 said:
So i started eating a healthier diet-- wheats, raw veggies, nuts, and other things that are terrible for Crohn's! so i was getting worse . . .
.

hey i did that as well!!! lol, it put me in hospital!

glad to hear your symptoms has lessened gustav, as you've worked out by now Crohns can be majorly affected by personal stress's. coming out seems to be a weight off our shoulders.

glad you could join us.

Jed.
 
hey Gustav, welcome to the forum :)

i think one of life's important lessons is to talk!! if we have something on our mind, if we have a problem.. whatever it is, it's better to share it than let it worry us - this is particularly true for Crohns sufferers.

glad to hear your symptoms are pretty much manageable now.
 

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