- Joined
- Jul 31, 2011
- Messages
- 8
My name is Juli and I've had Crohn's for about 16 years. I'm 30 now so you can do the math. I was diagnosed the summer before my Sophomore year of high school when a routine blood test showed my WBC was crazy out of control. The doctors thought I had Leukemia at first, but after 10 days in and tons of tests later, they diagnosed me with Crohn's Disease. I had gotten down to 57 pounds so it was a good thing when they finally figured it out. I had to go home with a PIC line for the next 3 months so I could gain some weight. I struggled the rest of my school years being sick a lot, which is why I am still going to college now. I will finally be getting my A.A. degree after the summer semester, so I'm a little relieved to be getting somewhere at last.
I started my Crohn's journey on Prednisone, then Asacol, then nothing for a few years, then Mercaptopurine for the last 10 years (minus the 2.5 years I was pregnant and/or breast feeding and the healthiest I have ever been). Since I stop breast feeding my second child a year and a half ago, Crohn's has come back to me with a vengeance. I am now taking Asacol 6 times a day, as well as Mercaptopurine. I refuse to go back on Prednisone since it seems to be an extremely temporary fix that makes my face super fat and me act like a psycho. Nothing is working anymore. I told my doctor today that I need to try something else so I am going to see him this week about starting Humira. I'm a little nervous about injections :voodoo: but at this point, I will try anything. I am on a colorful assortment of supplements that I like to think make me feel a little bit better. I've done tons of research and come up with a few that are supposed to help with energy levels, inflammation and your immune system: virgin coconut oil liquid gels, peppermint & oregano oil complex, coenzyme B food complex, B-12, MGC-5 mushroom complex, and the ever trustworthy Omega 3 fish oils.
So if anyone has any tips, tricks, or warnings for starting or being on Humira, please let me know. Thanks! Glad I found this site!
I started my Crohn's journey on Prednisone, then Asacol, then nothing for a few years, then Mercaptopurine for the last 10 years (minus the 2.5 years I was pregnant and/or breast feeding and the healthiest I have ever been). Since I stop breast feeding my second child a year and a half ago, Crohn's has come back to me with a vengeance. I am now taking Asacol 6 times a day, as well as Mercaptopurine. I refuse to go back on Prednisone since it seems to be an extremely temporary fix that makes my face super fat and me act like a psycho. Nothing is working anymore. I told my doctor today that I need to try something else so I am going to see him this week about starting Humira. I'm a little nervous about injections :voodoo: but at this point, I will try anything. I am on a colorful assortment of supplements that I like to think make me feel a little bit better. I've done tons of research and come up with a few that are supposed to help with energy levels, inflammation and your immune system: virgin coconut oil liquid gels, peppermint & oregano oil complex, coenzyme B food complex, B-12, MGC-5 mushroom complex, and the ever trustworthy Omega 3 fish oils.
So if anyone has any tips, tricks, or warnings for starting or being on Humira, please let me know. Thanks! Glad I found this site!