New here

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

L

linds92

Guest
new here

hi my name is lindsay and im new to this board.:ycool:

My Story

Ever since May 2006 I had been losing a lot of weight, had bad stomach pains, felt dizzy, and had no appetite and had bad diarrhea. I also threw up a lot. So when I went to the doctor’s for a check-up they noticed all of my weight loss. So I had to go in every week and keep a food journal of everything I ate. Well, each week I went in I would lose some more weight. They made me drink two bottles of ensure plus every day. Let me tell you, that stuff is nasty! I’m sure you have probably drank it too at some point. The doctor tried to say I had an eating disorder, but I knew I didn’t. I was really mad that they thought this. They took some blood samples and stool samples, but they said it all came back fine. Well the doctor was about ready to admit me to the hospital by then. Each time they took a blood test my mother asked them if they could please check my albumin level, but they didn’t. So, the third time my mom asked them to check my albumin when they took another blood sample they finally did. Well, it came back very low so I got referred to a GI specialist right then. So on a Monday I went to see my GI doctor. He looked at me and felt my belly and checked my fingernails and then he said that I probably have crohn’s but we need to do some procedures to make sure. So I did the no eating thing and had the stuff to clean you out. Gross stuff. LOL. SO I went in that Wednesday and I got a colonoscopy with biopsies and an endoscopy. I was scared and nervous about this because I have never had anything like this done before. But it was not as bad as I thought. I got knocked out so I was fast asleep, but I did wake up once and I saw my insides on the monitor. It was cool, but kind of gross. So they gave me some more sedatives and I fell back asleep. Well, good thing is, is that I know what I have. But bad thing is, is that it is crohn’s. I have it everywhere except my mouth and esophagus. Later on I had to get and upper GI series with small bowel pass through. Barium is the nastiest stuff ever!!! Even worse than ensure. Well I had been put on lots of medicine it didn’t really seem to help that much. So, I had yet another blood test to see if I could take Imuran. I could, but it still didn’t really help that much. So, next drug in line was Remicade. I had to get a Tuberculosis test to see if I could take Remicade. I could. I was scared because it is an IV. You sit for two to three hours with an IV sticking inside of you to receive the medications. That wasn’t that bad either. As of right now I have had three Remicade treatments and my last one they doubled the dose because that hasn’t really been working all that great. I got a really bad headache that night. With Remicade I get headaches every day. I hate it. Right now it isn’t really helping, but it may have to take some time to work, I don’t know. Well that is all I can remember right now.
 
Hi and Welcome. Sad to say but your story is very familiar to most of us. I myself went for years being told I had a stomach ulcer, didn't! So far Remicade is working for me, hope it continues...hope it works for you soon.

Take Care!
 
kix66 said:
Hi and Welcome. Sad to say but your story is very familiar to most of us. I myself went for years being told I had a stomach ulcer, didn't! So far Remicade is working for me, hope it continues...hope it works for you soon.

Take Care!
Thank you!!:)
 
Hi Linds92 and welcome, we're all in the same boat so feel free to vent or ask all the questions you need to. So you haven't had surgery yet, right?


Ruth
 
Welcome Lindsay

Hello Lindsay and welcome to the forum. :)
You'll find a lot of us here have been or are going through the same circumstances as you.
But we're here to support one another on our journey with Crohn's.
Try to keep a positive attitude...you'll find that really helps.

Again..welcome.
Nancy
 
Welcome to the boards Linds92!

Haha. I didn't mind the Barium all too much. I would rather drink 2 sports bottles of that than drink the Half-Lyte jug and pills they gave to be clear me out the day before colonoscopy. lol.

When I went on Remicade, I felt great almost right away!

By the way, have you tried to change your diet since you've been diagnosed? I didn't change mine at all... but I think that is the reason why I kept having flare ups every so often. Just curious. Alritey, I hope all goes well.
 
Welcome lindsay!

I know what it is like to take ensure and found that after a while you actually get very used to it. In fact there was a point where for a few months when I was drinking this almond drink. I used to think it tasted so good even though it was the only thing I was drinking at the time. Well a few months after I stopped drinking it I tried it again... AND IT WAS DISGUSTING! I had just got so used to it being the only thing I was eating that I got used to it I guess.

Anyways I have heard that Remicade can take some time to work so just stick with it, The headaches are normal, and hopefully things start getting better soon!
 
black8.gif

I am sure that you will have a great time here and you will also make plenty of new friends ... jump right in and have some fun !!
 

Latest posts

Back
Top