New here!

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Joined
Dec 29, 2010
Messages
7
Location
Maine, USA
Hi, I'm AbbyLeigh. I'm an 18-year-old college student at Syracuse University (go big orange!). I was diagnosed with Crohn's Disease in December of 2009, at 16 years old. I don't really know a lot of other people with IBD in real life, so I thought I'd sign up here and give it a shot! I had to come home from Syracuse for this semester because of my Crohn's. So, I thought I'd see what wisdom people have to impart upon me and introduce myself!

EDIT: After perusing some other posts, I thought I'd add more about myself here.
I was diagnosed 12/09 after two years of symptoms building up and getting worse. I was very sick all throughout 2009, but I was studying abroad in Italy and did not have access to great healthcare. By the time I came home for the summer, I was much sicker than I'd been before and my mom took me to a GI doctor. We did the normal diagnostic dance, lots of tests and ruling things out, before I had an endoscopy and colonoscopy done in December and was subsequently diagnosed with Crohn's disease. I was immediately placed on 6mp and Prednisone. I was on Prednisone for about 10 months as we tried again and again to get me into remission. During this time, they dc'd the 6mp and tried me on a dozen other things- Asacol, pentasa, acupuncture, you name it. I was extremely sensitive to the Prednisone... my weight ballooned up 60 lbs, I was acne-ridden, moody, experiencing hot flashes and hypersensitivity. I went off the Prednisone for 10 weeks of remissed bliss during the summer of 2010, during which time I was living in Central America. However, shortly before I came home I flared up again, and was back on the steroids. In November of 2010, they started me on Remicade and rescoped me in December, almost exactly a year after I was diagnosed.
The Remicade in conjunction with Chinese healing finally got me into a good place for my first semester of college by May of 2011. However, I flared back up in January 2012, and here we are. They recently increased my dosage of Remicade and put me on Plaquenil to help with the arthritis. I'm still flaring, and I guess I feel really hopeless like I'll never be in remission or successfully be able to complete college.
So, that's my full story!
 
Last edited:
Stay positive and keep your spirits up as much as possible ... I know that is easier said than done! You can do it! Keep us posted!
 
Dear Abby,
You sound like a very strong young women. The fact that your dealing with your crohns the best you can and by looking for others to support you is wonderful! My son is 17 and was dx at 10. Remicade worked for him but we decided to take him off a few years ago and now he is full flare up again, we tried the remicade again and his body rejected it, so we are trying other treatments soon. They put him on another steroid called entocort which isn't supposed to have as many side effects. Im a newbee also to this forum and i talked to my son last night about looking on it. If he joins I will have him look for you...he also needs someone close to his age that understands what it's like. Stay positive and many blessings
 
Hello AbbyLeigh and welcome to the forum. Sorry to hear that you are not doing well at the moment :( How long have you been on the increased dosage? Is your doc aware that you are still having symptoms? Have you looked at diet at all? Whilst it is not a cause or a cure it may help to follow a low residue diet for a while so the tum can calm down. Perhaps have a nosy at our diet ane sups forum about this: http://www.crohnsforum.com/forumdisplay.php?f=17.

Hope you can be feeling better soon.

AB
xx
 
sruberti- if he makes an account, definitely give him my sn! I'd really encourage him too, I wish I had known about this forum when I was first diagnosed! thanks so much for your support :)

angrybird- thanks, I'll definitely start to lower my fiber intake! I already avoid things like raw fruits and veggies but hopefully a few more tweaks to my diet and I'll be feeling better :) Last week was my first time on the increased dosage! I just switched to a new doctor and he's going to wait and see how this works before adding in other meds, particularly because I do really poorly with prednisone. Thanks for the advice!
 
Hi AbbyLeigh and welcome to the community. :)

I'm sorry to hear you're struggling right now :( I hope that the increased dose of Remicade does the trick. A couple questions for you:

1. Have you thought about trying enteral nutrition for awhile to see if it can help calm things down and aid the Remicade in getting you to remission?

2. Have you had your vitamin B12 and vitamin D levels tested? People with Crohn's Disease are commonly deficient in these two and proper supplementation can help a lot if you are indeed deficient.

I wish you all the best!
 
Thanks so much! I talked to my mom about the enteral nutrition and we're definitely going to talk it over with my GI doc and see what his take on it is.
I am taking both of those yes!
Thanks for the tips and the welcome!
 

Latest posts

Back
Top