New Member and Battling crohns

[icepik]

Well guys I'm so glad I finally found a forum for crohns. I live in Virginia 19 yrs of age and was diagnosed at the age of 9. I have had some really hard times in my life dealing with crohns including not being able to get my high school diploma but settlling for a GED. Well I'm going to try and make this short so here's my story
Growing up I had no signs of anything until one day my mom and dad were divorced and I went to my moms house in TN on the weekends. So that friday I felt really bad and couldnt continue to go back to school the following monday, this went on for about 2 weeks going to a Medexpress and they kept saying it was a sore throat. I was an overweight kid at the age of 9 i weighed about 130 within a week I weighed myself and was 78lbs. Finally I went to the hospital spent days and days their going through so much pain between the amounts of blood taken and the crohns in general the doctors yet still could not find out what was wrong they suggested I see a speacialist immediately. So the day I saw my speacialist I sat and waited so long and the first look he gave me he said "I'm affraid you have crohns disease." That was such a turning point as for everyone here I'm sure it was to. That day my doctor gave me a shot of prednizone and I felt like Superman!!! Now 19 I've learned alot but one thing is that I feel I'm at the worst stage in my life dealing with Crohns. I've been on pretty much every medicine Prednizon, Immurane, Pentasa, Entocort, Robinal, Remicaid, Iron and now only on the Humira Pen Around about august of last year I was still on Remicaid but it seemed to stop working as well and instead of every 8 weeks going for treatment it only lasted for around 4 to 6. So my doctor put me on the Humira Pen in September, ever since then I've felt horrible I went March 5th 2009 to my doctor to discuss this with him and he says its because it is virus season and wouldnt help me out at all the appointment was pretty much a waist of time. So now leads me to my new theory I believe my doctor wouldnt help me because Honestly I'm kinda ashamed to admit this but ever since I've had crohns my whole family has struggled finacially and now more than ever I lost a great job I had working in a call center so now I'm managing a little to get by on my job but still cannot afford all these bills I'm taking my 2nd humira pen later on around 10 am today but I'm not suppose to be sceduled for it until thursday as instructed if I have early symptoms to take it early so hopefully having a little extra humira in me will stop the pain well guys sorry for such a long story but I hope to get to know more people relating with my problem
Thanks to all,
Sam

 

[mRae85]

:welcome:

Your going to love it here, everyone is supportive and this site is filled with information! I know how it feels to struggle finacially with this. No insurance and still too sick to work. I got my GED also, back then no Dr really knew what was wrong with me, to make a long story short they just thought I was crazy or I was making myself sick. I have went through alot of Dr's to get to the one I have now, he truely cares. If you think maybe the Dr is brushing you off, dont think twice about seeking out a new one. Alot of places have sliding fees. I only pay $10 each time I go in because I have no insurance. Im not too sure how VA works, but I am sure they have places like that. Im actually a short hop, skip , and jump from you, I live in WV haha.

 

[icepik]

Thanks mRae85 Yeah until now the only worst time i had dealing with it was when I had done like my 4th treatment of Remacaid I had just got my licesne and my mom didnt feel well so I offered to drive us back because at the time we had to travel to kingsport, Tn to get the remecaid but yeah and on the way back car runs out in front of me I ended up having a compond fracture in my leg and the worse was the doctors said they couldnt give me any pain meds or nothing becuase i had just gotten my iv treatment so from 2pm til 9 that night when i finally blacked out my stomach not to mention my leg was in so much pain but now it just seems like the crohns is progressing worse so idk. But yeah Im on my mothers insurance policy which is 438 a month plus the humira pen for 2 is 200 so i mean the insurance really isnt helping that much. Me and my mom thought about finding someone else its just me breaking that boundary where ive known my doctor for so long switching to someone else scares me. And what part of WV I use to live in bluefield wv

 

[mRae85]

Ouch! omg, I couldn't imagine not being gave pain meds for all of that!

I've went through ALOT of Dr's and seriously, having a Dr that you can talk to , trust, and one who takes everything seriously is the best Dr to have. If I can't make it in, all I need to do is call mine, he will handle things over the phone for free.

 

[icepik]

wow thats awesome I guess ill start my search then because this pain is not something i liked before nor now lol I'm going to do m humira pen today but sometimes I get so depressed because the pain that thing causes doesnt seem worth it at times if im still flaring up like this so idk but thank you for being there this is the first time I've been able to find someone who can relate in my hometown everyone judges people so because i had something they have never heard of I was an outcast but this feels so much better to actually talk to someone!!!! this just made my day

 

[icepik]

P.S. Sometimes the pain makes me wanna go back to smoking So yeah Im struggling with that as well I quit smoking in Dec and havnt had one since but at times really needed one lol

 

[mRae85]

haha, funny story (it wasn't back then) when I first tried to explain to my neighbor I had an autoimmune disease called Crohns, she said "I have never heard of that one but don't men suck" she seriously thought it was a STD!!!! So when it comes to other people not understanding, I know how that goes. Still even with the people I do know in my life, they all want to understand but I know they dont, and talking about my symptoms is like a taboo thing for the most part. I know talking about bloody poo is not a good dinner conversation but it is a part of life. I will quit smoking when I can seriously say it wont stress me out more, thinking about getting a script from the Dr to help me out on that.