New member-My story

[Justicexhaze2]

Some how got tagged as a spam and deleted. Believe me...I am real. My name is John. I live in Port Charlotte, FL. I will be 44 at the end of this month. I was diagnosed at age 7. I thought God was punishing me. The pain, the depression, feeling helpless and lost. Feeling worthless and a burden to my wife and family. All these emotions can be overwhelming. Each day I find a reason to get up. Social security says I may be sick...but I should be able to do "some" work. Not sure what that means. Work for 2 weeks..take a week off. Work 2 days off 4? 2009 I was in school, I missed 14 weeks because of being sick, Dr appts and proceedures. What job allows for that kind of flexibility? Just venting I guess. Just wanting a normal life. I know I am not alone. I started the crohns chronicles on youtube...I ask others to do the same. The amount of pain (mentally and physically) we all endure can seem out of control and bottomless. I know some of it is the prednisone and alot of mental fatigue. But I know I cannot give up...I have a 17 year old son I need to be there for him. I worry too much...I cannot help it...and I know it doesnt help my disease. I just want a brake..just for a few years.:confused2:

John C

 

[Crohn's 35]

Hi John and welcome to a place where we fully understand what you are going through, however I didnt have it so young and that is very hard in life. I have had symptoms for 35 years and just dx with colitis on the large bowel after 17dx of Crohns and somehow we have to pick ourselves up and keep going, venting, screaming and crying works for me sometimes. I want just one month of pure bliss! Just I full month. It is hard on kids too, and support means alot for you as well. Have you tried Remicade for your Crohn's? I am on pred now 40mg, aint that special. I am on Nexium too for heartburn caused from pred of many times of usage, and got a hiatus hernia. We are here for you, glad you kept trying to get on here, you are safe with us now! Keep us updated on you ok?

 

[tamesis]

Welcome John! I think it's pretty common for the spam thing to happen, it happened to me when i first joined. It's just hard to weed out the good from the bad sometimes, and we get a lot of spam here.

I'm so sorry to hear you've had such a rotten time with this disease, and i hope you can get things under control soon. This is a great place to vent, and receive amazing support and knowledge from some great people.

 

[Justicexhaze2]

thanks

Hi John and welcome to a place where we fully understand what you are going through, however I didnt have it so young and that is very hard in life. I have had symptoms for 35 years and just dx with colitis on the large bowel after 17dx of Crohns and somehow we have to pick ourselves up and keep going, venting, screaming and crying works for me sometimes. I want just one month of pure bliss! Just I full month. It is hard on kids too, and support means alot for you as well. Have you tried Remicade for your Crohn's? I am on pred now 40mg, aint that special. I am on Nexium too for heartburn caused from pred of many times of usage, and got a hiatus hernia. We are here for you, glad you kept trying to get on here, you are safe with us now! Keep us updated on you ok?

I tried Remicade in 99' then again in 2008. both times I had severe reactions, swelling of joints, hands, face. So Humira and prednisone is what I use now...
thanks for the quick response.
jc

 

[lilninja]

welcome john! im sorry to here that you are having a hard time. i hope there is relief in your near future!

 

[imisspopcorn]

:welcome: John...This place is a great for support and friendship. This disease is so debilitating because it strikes us in our prime years for wage earning....The government just doesn't get it!....I am so glad you posted on the forum. This place has saved my sanity. I hope to see you around

 

[Jennjenn]

Welcome

 

[Cackman888]

welcome john, chin up buddy

 

[Guest]

hi John, welcome to the forum i'm so sorry your account was deleted - this will have been completely in error while trying to clear new spam accounts, which unfortunately we get every day i'm really grateful you rejoined.

sorry to hear about how things are for you right now... Crohn's seems to have a lot of knock-on effects that those who've never had it affect them just don't realise. but here, we understand completely - and you have our support. looking forward to seeing you around the forum.

 

[Astra]

Welcome John!
keep your chin up mucker, this forum will be a life saver for you, it has helped me to keep sane and get my sense of humour back!
I wish you well xx

 

[merrywidow]

welcome aboard. if you need anything just ask, they are plenty of us here, someone will know the answers.

 

[Justicexhaze2]

Thank You

Wow...thank you for the overwhelming response. I got up this morning and saw all of this......I cannot express in words a sense of relief and how "un alone"(not sure if thats even a word) I feel now. Cannot wait to explore more of the site.

John C

 

[farm]

Welcome John!