- Joined
- Sep 26, 2010
- Messages
- 5
Just found this board. Diagnosed 11 years ago with CD and just turned 50 this summer. Did really well on Asacol for many years but recently have been having more problems and not feeling well at all. Last week Dr changed my meds to Pentasa and Entocort and I am having a GI Upper and lower at the hospital this Wednesday.
For years my CD has been mild and not something I think about much, but about a year ago it started to get worse. More bad days than good days. Lots of pain, fatigue, many hours spent in the bathroom...run to the bathroom trips when I am out and about or after eating. Food intolerances are growing to where mostly living on milk, rice, mashed potatoes and toast.
The kicker is I am also diabetic and blood sugar control is a nightmare when you are only eating carbs! The food issues and struggle are never ending AND I don't feel good most of the time. Not much fun and I am getting really tired mentally and physically.
So, I am now trying new meds, going for tests and back on the path to at least trying to find some answers and I thought maybe a support group might be a good addition to refresh my attitude on the journey.
Every time I see my doctor...all my doctors...I always say, "And you are sure I have Crohn's?" They give me the serious look and say, "Yes." But I STILL haven't accepted it...I still keep hoping it will go away and everyone will say, "Oh, we were wrong. It was just a bug." Not much chance of that after 11 years, but my mind just won't seem to ACCEPT it. I do not want to admit I am sick.
Thanks for listening to my story (whine!).
For years my CD has been mild and not something I think about much, but about a year ago it started to get worse. More bad days than good days. Lots of pain, fatigue, many hours spent in the bathroom...run to the bathroom trips when I am out and about or after eating. Food intolerances are growing to where mostly living on milk, rice, mashed potatoes and toast.
The kicker is I am also diabetic and blood sugar control is a nightmare when you are only eating carbs! The food issues and struggle are never ending AND I don't feel good most of the time. Not much fun and I am getting really tired mentally and physically.
So, I am now trying new meds, going for tests and back on the path to at least trying to find some answers and I thought maybe a support group might be a good addition to refresh my attitude on the journey.
Every time I see my doctor...all my doctors...I always say, "And you are sure I have Crohn's?" They give me the serious look and say, "Yes." But I STILL haven't accepted it...I still keep hoping it will go away and everyone will say, "Oh, we were wrong. It was just a bug." Not much chance of that after 11 years, but my mind just won't seem to ACCEPT it. I do not want to admit I am sick.
Thanks for listening to my story (whine!).
. I too after my surgery made that mistake I was "cured" and I surely paid for it down the road. I was diagnosed when their were no computers and not much knowledge of the disease and I was struggling with doctors and nurses because I had my appendix out and then a full year of tests. Had my first resection but carried on as if tho nothing was different. No diet change, I smoked and even had a few drinks here and there, then the big stress came in my life and boom.... led to my second surgery. You can run but you can't hide. 
