Hi
I am helping my 26yr old son with his journey. He was diagnosed a week ago and had a newer type scan done and more blood work. He was diagnosed by colonoscopy. Crohns in the right colon and terminal illium. Moderate to severe. I told his story in the my story section a week ago. So the gastro said with his being severe she wants to use the big guns first. He is on prednisone 30mg for a 7 days now and slowly tapering by 10mg this week and then dropping by 5mg. He is going through the insurance stuff for approval to try remicade. He was offered Humira and cimzia also. Not sure on spellings sorry. We are applying for help on his co payment as well through the drug company. This is a financial nightmare like I have read so many of you are going through as well. This is going so fast that we are all overwhelmed. Him the most of course. I can't take the illness away for him. I can only support him and read as much as I can. I help schedule his tests for him and remind him of things. That is all I can do. Mother's guilt is eating me up. Staying positive for him and helping him sort his way through a new way to live. Life changed overnight. I wanted to thank everyone who journey before him for the help they are offering the newbies. I felt so much more prepared during our gastro visit today because of your posts. I know he will find his way here one day. Right now he can only take this in small doses. Are there people who have been in remission for years? I know sometimes only those with less that good results tend to come to forums because if your feeling awesome your out living it life and don't want the daily reminders. I guess I am trying to ask if there is some slice of hope for decent quality of life? I know my friends husband years ago had a bad flare and had three surgeries, has short gut now and has been off meds for many years and doing decently. Over 20 years. Is that an exception or are there good success stories?
I am helping my 26yr old son with his journey. He was diagnosed a week ago and had a newer type scan done and more blood work. He was diagnosed by colonoscopy. Crohns in the right colon and terminal illium. Moderate to severe. I told his story in the my story section a week ago. So the gastro said with his being severe she wants to use the big guns first. He is on prednisone 30mg for a 7 days now and slowly tapering by 10mg this week and then dropping by 5mg. He is going through the insurance stuff for approval to try remicade. He was offered Humira and cimzia also. Not sure on spellings sorry. We are applying for help on his co payment as well through the drug company. This is a financial nightmare like I have read so many of you are going through as well. This is going so fast that we are all overwhelmed. Him the most of course. I can't take the illness away for him. I can only support him and read as much as I can. I help schedule his tests for him and remind him of things. That is all I can do. Mother's guilt is eating me up. Staying positive for him and helping him sort his way through a new way to live. Life changed overnight. I wanted to thank everyone who journey before him for the help they are offering the newbies. I felt so much more prepared during our gastro visit today because of your posts. I know he will find his way here one day. Right now he can only take this in small doses. Are there people who have been in remission for years? I know sometimes only those with less that good results tend to come to forums because if your feeling awesome your out living it life and don't want the daily reminders. I guess I am trying to ask if there is some slice of hope for decent quality of life? I know my friends husband years ago had a bad flare and had three surgeries, has short gut now and has been off meds for many years and doing decently. Over 20 years. Is that an exception or are there good success stories?
