New to crohns and no support from doctor

[worriedsoul]

Hello all,

been suffering about 5 yrs from the cramps and running to the loo Alot, always put it down to what i had eaten thought i was lactose intolerant,

finally doctor sent me to hospital but only because i had an abscess just slightly inside my anal passage, and after that burst i insisted she sent me to hospital,

so had my colonoscopy Saturday, and would like help to understand what it all means as none of this has been explained to me by a doctor after the procedure the Dr said most likely crohns, he gave me a sheet of paper told me to take it to my gp and get the meds he had wrote down,

heres what my paper said,

Findings, ibd ? crohns

endoscopic diagnosis, patcy inflamation ? crohns

recomendations , please prescribe Mesalasine 1.6gms BD

COMMENTS, Patchy areas of inflamation with cobble stone appearance in the caecum,transverse and proximal left colon, terminal ileum normal. rectum apears spared . ? crohns i have taken segmental biopsies , gp to please prescribe MESALASINE and return to Dr -----

what exactly does all this mean and the drug he has said my gp to give is not the same name he has said my gp has given me mesalazine (could ut be a spelling error on my paper) 400mg amd i am to take 4 tablets twice a day,
does that sound right to anyone 8 tablets a day and am i to be on these for life? please any help would be so appreciated many thanks,

sorry yes the dr who done the colonoscopy also said i had an ulcer,

 

[CeeCeeGo]

Hello and welcome
This is a really great forum - full of good information and very supportive people. If you can spend some time looking through the various areas and I am sure some of your Q's will be answered.
There is a good organisation in the UK called NACC and their website has lots of useful information. Their website is www.nacc.org.uk.
It might also be worth seeing if your GP will introduce you to your local IBD hospital team. I have found my local IBD nurse to be really helpful and also can be contacted over the phone or by email.
Good luck and ask lots of questions to make sure you understand what they are telling you about your condition & also the meds they are suggesting.
Take care.

 

[SarahBear]

Hi, worriedsoul!

I was just wondering if you could update us on how you're doing?

Reading through your post it sounds like you were diagnosed fairly certainly with Crohn's. How are you getting on with the mesalazine? Eight tablets a day is actually half of the normal dose of mesalazine. When I took it, I was also on eight tablets, but most people seem to take sixteen. It's rather annoying, isn't it?

Yes, you are likely to be on medication for the rest of your life, but not necessarily this one. If it doesn't work for you, there are other options (most of which don't require downing eight pills a day - if that is an issue for you, you could ask your doctor about transferring to another medication). But, being on medication doesn't mean you can't live normally - in fact, it can enable you to do so.

:hug: I hope you're doing well!