Hi all,
My name is Sonia and I am certainly far from new to the 'world' of Crohns disease being a 15-year suffer.
I have been meaning to become a part of this community for some time and tonight, after a routine colonoscopy, I decided this was the time.
I was first diagnosed with Crohns at the age of 11, with the normal symptoms of huge weight loss; sever abdominal pains, and diarrhoea but no bleeding. It was months until they found and correctly diagnosed what the problem was.
After many years of living on and off steroids and anti-inflammatory medications and being in and out of hospital, I simply (in my opinion) began to grow up.
Once I turned 18 I began to get serious with my disease, watched everything I ate, exercise constantly, seeked other opinions over western medicine and made a personal choice to not let this disease over come me.
During this time I was completely of my meds (salazopyrin) and was doing incredible well, in fact my doctor was often surprised with how I was and the tests results. At 22 (I think) I had my first ever operation and had my gall bladder with gall stones removed as this was causing my problems. I recovered perfectly from this op with no issues with my Crohns.
Up until now I have been stable, but this year has made me worry. 3 months ago I found my first anal abscess, this sent me in a panic. First thing that came to my mind was cancer. I still have the abscess and I am on medication for this as the doctor is reluctant to operate as it can cause complications with the sphincter, so fingers crossed that these meds will get rid of my abscess completely.
Also today, I had my routine 2 year colonoscopy, which all you know is a nightmare, anyway I was told for the first time they found polyps (which they removed) and advised me that I have to start me meds again, which has really concerned me.
I can't understand how I can feel great, be so careful and then have these problems. I was so mad, and now I’m worried I could have cancer.
Can anyone share some advice with me on his or her experiences and how I could get back on track?? Is there anything i should be doing or tips in regards to my anal absess or the removal of the polyps. Just to be clear, I have never had any surgery related directly with my Crohns, so no removable of bowel etc.
Thanks for hearing my story and i hope that we can help each other with our experiences.
Sonia
My name is Sonia and I am certainly far from new to the 'world' of Crohns disease being a 15-year suffer.
I have been meaning to become a part of this community for some time and tonight, after a routine colonoscopy, I decided this was the time.
I was first diagnosed with Crohns at the age of 11, with the normal symptoms of huge weight loss; sever abdominal pains, and diarrhoea but no bleeding. It was months until they found and correctly diagnosed what the problem was.
After many years of living on and off steroids and anti-inflammatory medications and being in and out of hospital, I simply (in my opinion) began to grow up.
Once I turned 18 I began to get serious with my disease, watched everything I ate, exercise constantly, seeked other opinions over western medicine and made a personal choice to not let this disease over come me.
During this time I was completely of my meds (salazopyrin) and was doing incredible well, in fact my doctor was often surprised with how I was and the tests results. At 22 (I think) I had my first ever operation and had my gall bladder with gall stones removed as this was causing my problems. I recovered perfectly from this op with no issues with my Crohns.
Up until now I have been stable, but this year has made me worry. 3 months ago I found my first anal abscess, this sent me in a panic. First thing that came to my mind was cancer. I still have the abscess and I am on medication for this as the doctor is reluctant to operate as it can cause complications with the sphincter, so fingers crossed that these meds will get rid of my abscess completely.
Also today, I had my routine 2 year colonoscopy, which all you know is a nightmare, anyway I was told for the first time they found polyps (which they removed) and advised me that I have to start me meds again, which has really concerned me.
I can't understand how I can feel great, be so careful and then have these problems. I was so mad, and now I’m worried I could have cancer.
Can anyone share some advice with me on his or her experiences and how I could get back on track?? Is there anything i should be doing or tips in regards to my anal absess or the removal of the polyps. Just to be clear, I have never had any surgery related directly with my Crohns, so no removable of bowel etc.
Thanks for hearing my story and i hope that we can help each other with our experiences.
Sonia
