Hi everyone, my name is Mike and have been diagnosed with Crohns since the mid 1980's. My symtoms related to lethagy, loss of weight, loss of taste and pain in the abdomen area. I was treated with Prednisone off and on for almost 8 years before having to undergo sugery in 1995, where I had some ilium and the sigmoid removed, 45cm in total.
As a result of the prednisone medication my bone density weakened severly and in 1997 I broke my left hip in a fall which required the hip being replaced.
After the surgery in 1995, my crohns went well for a number of years until around 2002, when I suffered an adhesion in the bowel and again I endured surgery as the Dr considered Crohns had returned, but after surgery he advised it was only the adhesion that caused the blockage.
After this surgery my Crohns went well again until 2010, when I again suffered a blockage in the bowel although symtoms were not the same as I had originally had back in the 1980's only that I blocked up again fairly quickly. I had arranged for a colonoscopy at Port Macquarie and it was found that my crohns was evident but the doctor did not investigate properly as a few weeks later I had another complete blockage and underwent major surgery again where it was found another section of the illium was completley blocked and required removing. This ended up with 4 weeks in John Hunter Hospital in Newcastle.
After recovering I was referred to a Gastro Dr who arranged for another colonoscopy about 8 mths after the last surgery which found further lesions of crohns. I was prescribed axoprin (imuran) and after taking it for a week suffered a severe reaction to the meds which resulted in me being admitted to ICU at John Hunter again, these symtoms included profuse sweating, extreme tiredness, then extreme shivering off and on as well as dehydration. In hospital I deleloped blood clots on my lungs and needed further treatment for the clots.
As I write this I am still recovering from this last hospital visit and now take warfarin for the clotting in the lungs, slow K as my pottassium is low. For my Crohns my doctor has sought approval from medicare for me to use the Humira pen seeing that I had a reaction to Axiprin.
I am yet to start the Humira pen treatment and am a bit concerned given the adverse reaction to the axoprin.
As a result of the prednisone medication my bone density weakened severly and in 1997 I broke my left hip in a fall which required the hip being replaced.
After the surgery in 1995, my crohns went well for a number of years until around 2002, when I suffered an adhesion in the bowel and again I endured surgery as the Dr considered Crohns had returned, but after surgery he advised it was only the adhesion that caused the blockage.
After this surgery my Crohns went well again until 2010, when I again suffered a blockage in the bowel although symtoms were not the same as I had originally had back in the 1980's only that I blocked up again fairly quickly. I had arranged for a colonoscopy at Port Macquarie and it was found that my crohns was evident but the doctor did not investigate properly as a few weeks later I had another complete blockage and underwent major surgery again where it was found another section of the illium was completley blocked and required removing. This ended up with 4 weeks in John Hunter Hospital in Newcastle.
After recovering I was referred to a Gastro Dr who arranged for another colonoscopy about 8 mths after the last surgery which found further lesions of crohns. I was prescribed axoprin (imuran) and after taking it for a week suffered a severe reaction to the meds which resulted in me being admitted to ICU at John Hunter again, these symtoms included profuse sweating, extreme tiredness, then extreme shivering off and on as well as dehydration. In hospital I deleloped blood clots on my lungs and needed further treatment for the clots.
As I write this I am still recovering from this last hospital visit and now take warfarin for the clotting in the lungs, slow K as my pottassium is low. For my Crohns my doctor has sought approval from medicare for me to use the Humira pen seeing that I had a reaction to Axiprin.
I am yet to start the Humira pen treatment and am a bit concerned given the adverse reaction to the axoprin.
