New to Crohn's forum

[revaro]

New to Crohn's forum. Probably the oldest "diagnosed with Chrohn's" member:shifty-t:

Not sure if this is where I should post but here is my question (story to follow but not tonight)

Since last hospital stay, new doctor with new list of drugs. As a former 20 year pharma sales rep, I have some nickle knowledge about meds. Doctor had me on a plethora of new-to-me drugs, and I feel 100% better. Titrating down from Prednisone (yes, thinning hair) and also on Pentasa (yes, thinning hair). On Medicare with Part D (drug Rx). First filling of Pentasa it cost me about $25 for three month supply. Since February I've accumulated several hundreds of $$$ in co-pays; didn't realize that Medicare adds up the retail cost of drugs, and that has put me into the "Donut Hole" where I have to pay $375 for one month's supply. Pharmacist suggested I contact Shire and fill out assistance program form, have doc sign. Income qualified.

Just curious what some of you are paying for a month's supply. I will have to incur $2K before end of year for Pentasa cost to be reduced.

Thanks -- and again, if I posted on the wrong site, I am sorry. THANKS AGAIN, so glad I found this.

 

[Angrybird]

Hi there, I live in the UK so cannot help with your query unfortunately but I did just want to say 'hi' and welcome to the forum :bigwave: Hopefully someone will come along shortly who can assist with this. Look forward to hearing more about you when your ready.

AB
xx

 

[revaro]

Hi Angrybird!

Thank you for your warm welcome. Talked to pharmacist who suggested submitting "patient assistance" form to Shire (manufacturer of drug). "Gas-doc" only has to sign and mail. If I qualify, Shire will send 90-day supply.

Wow! You certainly have gone through quite a history. Hope you are in remission and doing well. Had re-section about 5 years ago, thought I could eat anything I wanted -- guess NOT! Hospitalized three months ago, new meds, doing so much better. Will be thankful and happy when off Prednisone :rosette2:
Feel confident if I maintain low fiber diet, properly take meds, I will be a "happy camper."

Again, it's encouraging to know there are such friendly and caring people out there. Didn't realize there are so many of "us" out there. Thank you again.

Revaro

 

[Angrybird]

No worries hun, glad you are feeling better and fingers crossed you will be off the pred soon!

Good luck with the form, let us know you get on with this.

AB
xx

NB My tum is ok for the most part, have just started a new med that hopefully will not give me any side effects.