- Joined
- Jul 8, 2012
- Messages
- 6
Hi! My name is Jen. I just signed up for this forum. I have suffered from crohn's disease now since 2005. I was just recently hospitalized for 15 days of hell. I had to have a picc line and was fed through it because my body and organs were shutting down from lack of nutrition. I had lost 30lbs. With the tpn I was able to gain 10lbs but after it was removed I lose weight when I eat solid foods. I just started renovate on top of my daily meds. Which was crazy because they couldn't start the treatments in the hospital because insurance wouldn't allow it. I had to wait until I was discharged before I could go to outpatient and receive treatment. I have had 1 treatment so far but only felt good the day I had it. I was hoping it would last longer then that? I have my next treatment Monday and can't wait because I am still experiencing a lot of D and pains when I eat. I am very frustrated because I have been on prednisone now for 7weeks also and still can't eat solids besides crackers. The prednisone has me a complete mess. I am so moody, anxious, shaky and can't sleep. Is there any suggestions to these awful side effects to prednisone?
There are a couple of alternatives that do spring to mind especially as you are still also having symptoms, one is Budesonide which is also a steroid that is less 'invasive' on the system and some people do better on this than the pred. The other is something like enteral nutrition which is nearly like what you have already been on and as you have already seen this can help with weight gain and also with settling the tum without the side effects.
