- Joined
- Jun 7, 2015
- Messages
- 1
Hello there,
I am new to this forum and know how forums work - however I have never joined as a patient before. I used to be a carer and joined a forum to understand the disease of the person I cared for to gain insight into their disease.
Now I find myself in the position of needing support and understanding from like minded people who are in a similar position to myself with the diagnosis of Crohn's Disease.
I am 54 years old and was diagnosed in April 2012 with Crohn's. I have recently been re-married for my third marriage and am working part time two days a week.
I live remotely in South West Victoira, Australia and find myself alone a lot of the time and with time to think - I tend to stress myself out with all kinds of ponderings both positive and negative depending on my mood. You see I also suffer from Tri-Cyclic Bi-Polar which in itself has been an ongoing battle for control of my moods since I was 16 years old.
I am a very positive woman who loves life and I am very scared at the moment as I have a lot of health issues going on for me right now.
I have osteoarthritis as well and seem to remember being told by either a fellow sufferer or a doctor (I can't remember who told me) that Crohn's and osteoarthritis go hand in hand. This would be my first question? Is this the case???
I know a few people who suffer from Crohn's (predominantly men) and I am wondering if there is not an underlying more sinister diagnosis waiting to be found.
I suffer terribly from pain in my right shoulder and right knee and have seen an Orthopedic Surgeon regarding my shoulder. He says that I am young to have bone on bone in the joint and he would not really want to operate on me until I am about 60.
I am on Targin for pain. I am suffering from insomnia terribly and with the onset of winter and the colder weather the pain in my right shoulder and knee is getting worse and keeping me awake more and more.
I have had an elevated white cell count in my full blood counts since I was diagnosed with Crohn's and this is my second question. Is this routine for someone who suffers from Crohn's or are the GP's missing something???
I will end this story by saying I welcome any and all comments as I am feeling very vunerable at the moment as I have not had a full medical examination including blood tests or MRI's or CT scans to show what is going on.
All I can tell you is that my General Surgeon who performed the bowel-resection (Ileal) I had in 2012, showed my husband and myself the photos he had taken of what was removed from me and there is no denying that the bowel was badly diseased. It was grey and flat and had not one bit of pink to it or ridges which a normal bowel should look like. I am not in denial I am just inquisitive to learn more about this disease which I know can be lived with and can be controlled with diet etc., however I have been told I am in remission.
If I am in remission, why do I feel so miserable and my body in so much pain on a daily basis? Or am I just getting old fast?
Thank you all for reading my story. I hope I have not complained too much but I am speaking the truth and that is all I hope to read from anyone who pm's me or answers my message.
Melanie
I am new to this forum and know how forums work - however I have never joined as a patient before. I used to be a carer and joined a forum to understand the disease of the person I cared for to gain insight into their disease.
Now I find myself in the position of needing support and understanding from like minded people who are in a similar position to myself with the diagnosis of Crohn's Disease.
I am 54 years old and was diagnosed in April 2012 with Crohn's. I have recently been re-married for my third marriage and am working part time two days a week.
I live remotely in South West Victoira, Australia and find myself alone a lot of the time and with time to think - I tend to stress myself out with all kinds of ponderings both positive and negative depending on my mood. You see I also suffer from Tri-Cyclic Bi-Polar which in itself has been an ongoing battle for control of my moods since I was 16 years old.
I am a very positive woman who loves life and I am very scared at the moment as I have a lot of health issues going on for me right now.
I have osteoarthritis as well and seem to remember being told by either a fellow sufferer or a doctor (I can't remember who told me) that Crohn's and osteoarthritis go hand in hand. This would be my first question? Is this the case???
I know a few people who suffer from Crohn's (predominantly men) and I am wondering if there is not an underlying more sinister diagnosis waiting to be found.
I suffer terribly from pain in my right shoulder and right knee and have seen an Orthopedic Surgeon regarding my shoulder. He says that I am young to have bone on bone in the joint and he would not really want to operate on me until I am about 60.
I am on Targin for pain. I am suffering from insomnia terribly and with the onset of winter and the colder weather the pain in my right shoulder and knee is getting worse and keeping me awake more and more.
I have had an elevated white cell count in my full blood counts since I was diagnosed with Crohn's and this is my second question. Is this routine for someone who suffers from Crohn's or are the GP's missing something???
I will end this story by saying I welcome any and all comments as I am feeling very vunerable at the moment as I have not had a full medical examination including blood tests or MRI's or CT scans to show what is going on.
All I can tell you is that my General Surgeon who performed the bowel-resection (Ileal) I had in 2012, showed my husband and myself the photos he had taken of what was removed from me and there is no denying that the bowel was badly diseased. It was grey and flat and had not one bit of pink to it or ridges which a normal bowel should look like. I am not in denial I am just inquisitive to learn more about this disease which I know can be lived with and can be controlled with diet etc., however I have been told I am in remission.
If I am in remission, why do I feel so miserable and my body in so much pain on a daily basis? Or am I just getting old fast?
Thank you all for reading my story. I hope I have not complained too much but I am speaking the truth and that is all I hope to read from anyone who pm's me or answers my message.
Melanie
