New to posting

[JV1971]

Can't sleep tonight could be for many reasons... Probably due to a really bad cold though. Is there any one that can give advice on Metotrexate? I started taking this in addition to remicade and prednisone and have been sick ever since. I was diagnosed with chrons in May of 2007 had a surgery started meds, wife left me for someone else most likely from being with someone that’s always ill. Sorry to complain but I am sure there is a positive somewhere.

 

[shazamataz]

Welcome JV1971 - sorry to hear things are so rough for you right now!!! I can't help with the methotrexate but there are a few on here who take it or have taken it. Hope you feel better soon

 

[soupdragon69]

Hi there JV. Welcome to the forum!

Ask away whatever you would like to know on the Methotrexate front or others. We will try to help in any way we can.

 

[Peaches]

:welcome: JV - what questions do you have about the mtx? I have taken both shots and pills and also taken it in conjunction with Remicade.

 

[imisspopcorn]

Welcome JV, I hope you start to feel better. There are plenty of friendly supportive people here. So, If you have a question, or just need to vent, feel free. We will do our best to listen and provide support....This disease can be isolating, I am glad you joined the forum.

 

[crazycanuck]

Welcome to the forum and sorry about the no sleep thing definately know what your going through there and I hope you get some help there. Good luck finding answers and cya around.

 

[JV1971]

:welcome: JV - what questions do you have about the mtx? I have taken both shots and pills and also taken it in conjunction with Remicade.

Peaches when you were on the remicade and mtx did you feel tired I also am having a problem kicking this cold. Any advice.

 

[pain in the butt]

:welcome: Welcome JV1971, Sorry can't help with med. Just wanted to welcome you and let you know I care. So sorry to hear that your wife left , it must be really hard as if your not going through enough already. Everyone here is great they have helped me out a lot and i hope to be able to do the same. I don't have it as bad as most. Hang in there things will get better, venting and sharing will also help . sending you a great big HUG

 

[Samantha]

Welcome JV, glad you have found us. Sorry I cannot help with Mtx and Remicade, haven't taken those yet, but I am sure there are many that will be able to help.

 

[gibby]

Welcome to the forum JV, hope you find some answers, i have and everyone here is always so quick to jump on board with you...

....cant help with the mtx and remicade stuff...altho i think thats where i am headed next so will be good to hear other peoples experiences too...

and complain away! thats what this place is for....people who actually understand your problems and dont look at you as if you are going to break...cos we are all stronger than that ...

good luck hun x

 

[soupdragon69]

Hey JV,

I have been on remicade almost 3yrs now. I was also on methotrexate for a year.

Metho can really wipe you out. One of the side effects is exhaustion/fatigue as if we dont have enough with our crohns!

With both the remi and metho having an impact on your immune system it might be worth touching base with your GP. You run the risk of the cold settling on your chest or causing sinus infection for instance and may need some treatment if you have had the cold for more than the usual 5-7 days.

I tend to use alot of vapor rub to ease my breathing and congestion. Drink plenty of fluids as you can become quickly dehydrated too.

Truly hope you feel better soon. Keep posting! We will always listen and help where we can ok?

((hugs))

 

[Peaches]

Peaches when you were on the remicade and mtx did you feel tired I also am having a problem kicking this cold. Any advice.

Without a doubt. Mtx and Imuran both really made me feel exhausted most of the time. And they both kinda made my gut feel "Crohnsie" all the time - basically crampy with diarrhea. I didn't like it. I finally got my doc to agree to take me off the mtx and just do the Remicade - and boy - am I happy I did that. The only time I feel that exhausted now is when the Remi wears off before it should. Just something to keep in mind if they take you off the mtx and you still feel tired right before your Remi. They drew a blood test on Remi levels on me and found that I had super low concentration of it before my infusion - so my dose needed to be increased. I have felt really good so far since we did that.

I agree with what Soup said about touching base with your GP. I have been sooo lucky and have only had one really bad cold in the last 6 years while on Remi - but it lasted FORever, like 5 weeks. I would just check with them to make sure you don't have an infection brewing. Get plenty of rest (as if your body will let you do anything else!) and make sure to drink plenty of fluids. Feel better!!

 

[Hana]

Peaches why did you have to take mtx in addition to Remi? Excuse my ignorance.

 

[Peaches]

Well, they started me out on mtx after I couldn't tolerate the Imuran. I still had disease activity on it so they added Remicade in and told me Remi would be more effective if I was on both. I didn't care - I wanted off the mtx because it just made me feel bad. I had no motivation to do anything - tired all the time and nauseous and crohnsie feeling for a day or two after my shot or taking the pills. I feel none of that since I've been on the Remi. Ok, actually I do get fatigue periodically - but other factors are in there for that.