W
Wonk
Guest
Hi everyone I've lurked a bit in the past six months. I won't go into the whole story here because well I hate telling it, I hate repeating it plus I figure if I start posting here regularly it will all come out eventually.
Anyways I was in the hospital with an infection early august and after treating it with antibiotics and taking Pentasa for a few months I still have a lot of pain. I started to feel better and then pain started to get worse again. I had a colonoscopy and my surgeon said that he didn't see any 'active' i nflammation just spots that looked healed over and when he poked the camera up to the illeum where the infection appeared to be on the CT he said that it was very narrow and he thought that the stenosis was due to fibrotic/scar tissue and not inflammation. However this is where he confused me, he wants me to go to medicine GI to see if a different drug therapy will help before a surgical intervention.
So here is where I am confused, will drug therapy have any effect on fibrotic tissue? Will the scar tissue causing the stricture go away on its own? Reason being I am fairly convinced that the inflammation is under control and I don't want to try a bunch of new drugs with new side effects for no reason.
Also I am working with my family doctor to try and find a pain reliever that works. We started with Tyelonl 3s which actually did an ok job at masking the medium pain I live with all the time although I could feel some of the stronger cramps break through but they weren't as intense. However the day after taking T3s I always have worse pain. T3's have always bothered me even before crohn's but you know how docs can be about pain meds, she wanted to see if it would help before moving on to other drugs.
Any suggestions on what I should ask for next? Family doctor won't try buscopan so I will have to ask my GI about that when I see him.
And yet another question, it seems like everyones symptoms are so different, I was wondering about the different subtypes of crohn's. I have had two flares and the first one went by undiagnosed and went away with antibiotics, but in both flares I have had no perianal disease and for the most part no 'D' it was only when I began only eating low residue foods after the hospital stay and to deal with the stricture that my stool changed to loose or rabbit pellets. My doctor didn't say anything about subtype, was wondering if anyone knew if it was significant in predicting what I might expect in the future. It took a fever of 105 and falling unconscious in public to actually get people to pay attention to what was happening to me because I didn't have any of the classic bowel movement symptoms only pain and infections which they were calling bladder infections.
Anyways I was in the hospital with an infection early august and after treating it with antibiotics and taking Pentasa for a few months I still have a lot of pain. I started to feel better and then pain started to get worse again. I had a colonoscopy and my surgeon said that he didn't see any 'active' i nflammation just spots that looked healed over and when he poked the camera up to the illeum where the infection appeared to be on the CT he said that it was very narrow and he thought that the stenosis was due to fibrotic/scar tissue and not inflammation. However this is where he confused me, he wants me to go to medicine GI to see if a different drug therapy will help before a surgical intervention.
So here is where I am confused, will drug therapy have any effect on fibrotic tissue? Will the scar tissue causing the stricture go away on its own? Reason being I am fairly convinced that the inflammation is under control and I don't want to try a bunch of new drugs with new side effects for no reason.
Also I am working with my family doctor to try and find a pain reliever that works. We started with Tyelonl 3s which actually did an ok job at masking the medium pain I live with all the time although I could feel some of the stronger cramps break through but they weren't as intense. However the day after taking T3s I always have worse pain. T3's have always bothered me even before crohn's but you know how docs can be about pain meds, she wanted to see if it would help before moving on to other drugs.
Any suggestions on what I should ask for next? Family doctor won't try buscopan so I will have to ask my GI about that when I see him.
And yet another question, it seems like everyones symptoms are so different, I was wondering about the different subtypes of crohn's. I have had two flares and the first one went by undiagnosed and went away with antibiotics, but in both flares I have had no perianal disease and for the most part no 'D' it was only when I began only eating low residue foods after the hospital stay and to deal with the stricture that my stool changed to loose or rabbit pellets. My doctor didn't say anything about subtype, was wondering if anyone knew if it was significant in predicting what I might expect in the future. It took a fever of 105 and falling unconscious in public to actually get people to pay attention to what was happening to me because I didn't have any of the classic bowel movement symptoms only pain and infections which they were calling bladder infections.
